This family is amazing!
The birth of a child is undoubtedly a joy for a family.
However, with the advent of children, epilepsy, cerebral palsy, autism, and thalassemia have been detected one after another. Where should such families go?
A group photo of Xuanxuan with his father, mother, and grandma.
Photo courtesy of the interviewee
It was found that something was wrong at the age of 3 months, seizures at 8 months, cerebral palsy and autism at 1 year old, and thalassemia at 7 years old... In 2008, Xuan Xuan’s birth brought him a lot of trouble. Qiang's family has infinite joy, but the illnesses that have been found one after another have left the family in trouble, but they never thought of giving up. They took Xuanxuan to seek medical treatment, accompany their children, and continue to carry out rehabilitation...
The path to medical treatment is long
The unbelieving family will never give up
When Xuan Xuan was 3 months old, his eyes were not chasing objects, his neck was crooked, his small hands were tightly clenched, and he was not crying or making trouble, and he was very well-behaved. His family found that he was not quite right.
When they were taken to the community and compared with children of the same age, Qianqiang's family felt even more energetic.
They began to take their children to the hospital for massage. Who would have imagined that Xuan Xuan had her first epileptic seizure when she was 8 months old.
During the intermittent convulsions for half an hour, Qianqiang's family was at a loss and rushed to the hospital. Qianqiang did not know that it was epilepsy.
Xuan Xuan is doing rehabilitation training.
Photo courtesy of the interviewee
Later, the doctor advised Qianqiang to take the child to Chongqing for an examination.
Qianqiang happened to be working in Chongqing at that time, so he went to Chongqing to make an appointment for an account three months later.
At that time, the doctors had undergone various examinations and observed various manifestations, and initially estimated that they had autism. However, because the child is young, it may also be stunted. It is recommended that the examination be performed after 3 months.
Xuan Xuan learns to swim.
Photo courtesy of the interviewee
Three months and three months, in the process of waiting for the next inspection, the Qianqiang family always hold a glimmer of hope.
"As long as there is no diagnosis, there is hope." Qian Qiang said.
But while waiting, the family also compared the symptoms of autism, and in fact gradually had an answer in their minds.
"At that time, my mind was blank, just thinking what to do?" Three months later, when the autism was formally diagnosed, the strong family did not speak.
Xuan Xuan learns roller skating.
Photo courtesy of the interviewee
After that, Qianqiang's family went into battle and took Xuanxuan on the road to recovery.
Back in Chengdu, they found a nearby rehabilitation institution within a week. From Xuan Xuan's 1 year old to 6 years old, day after day, year after year, grandma took Xuan Xuan for rehabilitation every morning. train.
The road to recovery is full of thorns
Xuan Xuan passed the tenth level of piano
On the way to Xuanxuan's recovery, the whole family was dispatched.
Mom and Dad continued to run around for the high medical expenses, while grandmother took on the heavy responsibility of caring for Xuanxuan.
"Different from ordinary children, children are weak, sweat too much, don't know how to urinate, and change 20 to 30 clothes every day. Grandma didn't even dare to take off her clothes while she was taking care of Xuanxuan." Qian Qiang said. Grandma didn't have any personal time of her own while taking care of Xuanxuan.
Mother teaches Xuanxuan to do housework.
Photo by Zhu Huan
Later, when Qian Qiang and his wife watched TV, they discovered that an autistic child played the piano very well, so they wanted Xuan Xuan to try it too to see if it worked.
“In the beginning, I bought the electronic piano and kept it at home. When the electronic piano was playing music, Xuanxuan stood by and listened, and walked away without music.” Qian Qiang said, the first attempt failed.
However, when Xuanxuan was more than 5 years old, a teacher who taught piano came to the rehabilitation institution.
Seeing other children going to learn piano, Grandma Xuan Xuan wanted him to learn too. The teacher asked Xuan Xuan to try. He knocked on the piano with the back of his hand, but the teacher refused.
"How can I let him learn the piano?" "At least his fingers have to be opened." After returning home, the grandma who refused to admit defeat had one more job every day-repeatedly breaking Xuan Xuan's fingers apart every day. Hang the root on the keyboard.
Two or three months later, Xuan Xuan's hands finally opened four fingers, and the teacher agreed to teach the piano.
A group photo taken by Xuan Xuan and his father.
Photo courtesy of the interviewee
Xuan Xuan quickly learned "Little Star", "Two Tigers" and "Little Hans", and also participated in the "Natural Talent" competition held in Wenjiang District.
"Although this child is autistic, he has a good sense of music and is very accurate in stepping on points. I hope that the parents can stick to it." During the competition, the judges' words made Qianqiang deeply encouraged.
Originally, I just wanted to practice piano so that Xuan Xuan could use his brain to direct his hands, move his hands, and improve concentration, coordination and hearing.
Who would have thought that Xuanxuan passed five passes, cut six generals, and obtained the tenth certificate of the Sichuan Provincial Social Art Level Music Examination.
Xuan Xuan plays the piano.
Photo courtesy of the interviewee
"In the past, Xuan Xuan couldn't sit still, it was easy to get emotional and lose his temper." Thinking back to the past, Qian Qiang said with emotion. Now Xuan Xuan, who is sitting next to the piano, calms down, playing every piece of music and playing the piano seriously. Become a part of Xuanxuan's life.
After the family's continuous rehabilitation exercises, Xuanxuan has changed a lot.
I have aura in my eyes; I feel less and less when I am emotional; I can open my mouth to talk; I laugh every day... This is a five-year-old to be called a father, a 6-year-old to be called a mother, and a 12-year-old to go to the bathroom alone. Everything about the child is getting better.
Dad resigned resolutely
Bring children into society
“You can’t wait for your child’s recovery time. Money can be earned after two years.” Qianqiang started a full-time life with a baby in 2019. He constantly explored and formulated rehabilitation training courses for Xuanxuan, and then improved through practice. .
Xuanxuan picks up vegetables for Dad.
Photo by Zhu Huan
"Even if he woke up before, he would not get up without our instructions and just lay in bed, but after the lunch break on August 27, he got up by himself and cleaned up the trash in the trash can. , Threw it into the trash can downstairs." For Qian Qiang, this was a turning point in his rehabilitation training for Xuan Xuan.
Get up, get dressed, clean up the trash, take the keys... "The single-point training that we usually carry out for him is connected in his own mind." At that time, Qianqiang was extremely happy, and later expanded Xuanxuan's thoughts on rehabilitation. .
After that, Qianqiang gradually began to train Xuanxuan to cross the road alone.
"There are 6 intersections with traffic lights and one intersection with no traffic lights on Xuanxuan's way to school." At the beginning, Qian Qiang always hid behind, silently following Xuan Xuan to safely "escort" him to school.
After being discovered by Xuan Xuan, he began to accompany Xuan Xuan. Unlike before, he would constantly introduce to Xuan Xuan the role of roadside shops and inculcate him with the idea of buying and selling.
Xuan Xuan took pictures of his father.
Photo by Zhu Huan
Recently, Qian Qiang took Xuanxuan’s video of selling toys in the park on the hot search.
From the very beginning Xuan Xuan stood on the side of the road to sell, to take the initiative to approach passers-by to ask questions, and then to introduce toys by himself. This seems very simple. In fact, Xuan Xuan and his father have simulated it countless times at home.
In the video, Dad always follows closely, and then gives advice in a timely manner. In fact, this is also one of Xuanxuan's training courses.
"I want to let Xuanxuan understand that not everyone will accommodate you in this completely unfamiliar environment. In fact, I need someone to reject him. The more I refuse, the faster he grows." Qian Qiang hopes to make Xuan Xuan in this way. Xuan learns the skills to live alone in the future.
"My ultimate goal is to help Xuanxuan live independently as much as possible, so that he can live alone even if we are not with him one day." Qian Qiang hopes that more and more people can pay attention to the autistic group , He also went to do public welfare sharing everywhere, sharing the results of his family's fight against the disease, and inspiring parents to persevere.
A photo taken by Xuan Xuan for his father.
Photo courtesy of the interviewee
Nowadays, Qianqiang takes Xuanxuan to travel around, feeling different customs, so that Xuanxuan can adapt to different environments; Qianqiang also taught Xuanxuan to take pictures with a camera, Xuanxuan took a picture that Qianqiang was satisfied with, and printed it. Come out and put it on the desk; Xuan Xuan has also learned to actively greet strangers and make friends...
Some people say that Qianqiang's family has created a miracle beyond the scope of medical care, but Qianqiang just feels that ordinary persistence can bring infinite light to hope.
Author: Zhu Huan