His Highness Sheikh Mohammed bin Zayed Al Nahyan, Crown Prince of Abu Dhabi. Deputy Supreme Commander of the Armed Forces, His Majesty King Abdullah II of Jordan, His Royal Highness Crown Prince Hussein bin Abdullah II and His Highness Sheikh Saud bin Rashid Al Mualla, Member of the Supreme Council and Ruler of Umm Al Quwain. "Making a Comprehensive Change in Pediatrics in the World," by Professor Bobby Gasper, Professor of Pediatrics and Immunology at London College, and professor of neuroscience at University College London, Professor Mango Corian.
HH Sheikh Rashid bin Saud bin Rashid Al Mualla, Crown Prince of Umm Al Quwain, HH Sheikh Hamdan bin Zayed Al Nahyan, Ruler's Representative in Al Dhafra Region, President of the Federal National Council, Dr. Amal Abdullah Al Qubaisi and HH Sheikh Nahyan Bin Zayed Al Nahyan, HH Sheikh Saif bin Zayed Al Nahyan, Deputy Prime Minister and Minister of Interior, HH Sheikh Hamed bin Zayed Al Nahyan, President of Abu Dhabi Crown Prince's Court, and His Highness Sheikh Abdullah Bin Zayed Al Nahyan, Minister of Foreign Affairs and International Cooperation. And His Highness Sheikh Khalid Bin Zayed Al Nahyan, Chairman of the Board HH Sheikh Dr. Sultan Bin Khalifa Al Nahyan, Advisor to His Highness the President, HE Sheikh Nahyan bin Mubarak Al Nahyan, Minister of Tolerance, HE Ayman Safadi, Minister of Foreign Affairs of Jordan, and a number of Sheikhs, members of the diplomatic corps and dignitaries.
Professor Bobby Gaspar began the lecture by talking about the so-called changing reality of pediatrics and their pioneering research that will help treat children with rare and complex diseases. "With the development of medicine, it is necessary to treat diseases in a different way. On the traditional idea of medicine and grain and the standard approach to treatment, by achieving a deeper understanding of the rare and complex diseases in children, by using the genetics that will characterize the medicine of the future.
"The importance of this lecture lies in the fact that it comes just before the inauguration of the Sheikh Zayed Center for Rare Childhood Research in London," said Professor Gasper, who has been a leader in the field of gene therapy research for the last 20 years and a global expert on immunodeficiency diseases. , On July 2, 2010, thanks to the generous donation of HH Sheikha Fatima Bint Mubarak, President of the General Women's Union, President of the Supreme Council for Motherhood and Childhood, His founding father Sheikh Zayed bin Sultan Al Nahyan -taib God Therah-, worth £ 60 million. "
"Working at the Sheikh Zayed Center for Research on Rare Diseases will allow us to accelerate the discovery and development of effective treatments for more than 6,000 complex and rare diseases, 75% of which affect children, and we will do our best to have a better and better life everywhere."
In the second part of the lecture Professor Mango Corian talked about diseases such as childhood movement disorders, including dystonia and Parkinson's syndrome. "In 2017 I was responsible for discovering the gene that helped predict children with stress disorder (Dystonia) who can benefit from deep brain stimulation, which has changed the lives of many in the development of a highly effective treatment that enabled injured children to regain their walking ability. "
"During our work, we have considerable experience in neurotransmitter disorders, including the lack of aromatic amino acids (dicarboxylase), where the levels of important chemicals (dopamine and serotonin) can be reduced in infected children, Natural causes severe difficulties in movement and painful convulsions in the body, "revealing that the team is currently undergoing a clinical trial can slow down and cure this disease, which is the experiment to deliver gene therapy directly to the brain of the patient.