Face-to-face丨Tsinghua dream of a teenager with a rare disease: "I hope to do my best to help others"
Li Qi, from Kaizhou, Chongqing, has been in Tsinghua University for more than ten days. With a score of 659 in the college entrance examination this year, Li Qi was admitted to Tsinghua's "Excellent Physician-Scientist" undergraduate, master and doctoral training program in clinical medicine.
Li Qi was born in a mountain village in Chongqing and was diagnosed with the genetic disease "progressive muscular dystrophy" in junior high school.
This disease can cause muscle atrophy, weakness of hands and feet, slow walking and easy falling. The disease will aggravate with age. At present, medicine has not found a cure for "progressive muscular dystrophy".
"Think about the spirit of mother planting flowers"
The cause of the incident has to start with Li Qi's mother Wang Xiumei. Shortly after Li Qi was born, she found that she did not have the strength to hold her son, and she could not even step over a five-centimeter-high step. Not recovering well.
It was not until her two sons showed symptoms of muscle weakness that she did a genetic test under the advice of a doctor. The test results found that she, her brother and her father had the same symptoms, and the disease also extended to her two sons. .
Reporter:
I got the diagnosis notice and told you this cruel fact. This is an incurable disease. Was it a state of collapse at that moment?
Li Qi:
Yes, it has fallen.
Reporter:
Then someone has to stand up first and say that life will move on.
Li Qi:
Our family is in a state of falling down and standing up at the same time.
Falling down means that I have to admit this fact, just like I usually have a lot of troubles and have to seek help from others. From this aspect, I think I have fallen down, but at the same time I stand up by myself, because life Still have to live, the day is still like this day by day.
Reporter:
Did you figure this out yourself?
Did you cross this hurdle yourself?
Li Qi:
This is forced by life, just like time waits for no one.
I repeated this sentence over and over again, because I really didn't think about it at the time, I just felt that the days were going to get by day by day.
Due to the atrophy of the calf muscles, Li Qi's walking speed is getting slower and slower.
He always put his hands on his back, found the focus of his body, and moved forward step by step.
If he walked fast, he fell easily, which left him with frequent bruises on his knees.
How to accept the reality has become a problem that the whole family has to face.
In order to take care of the two brothers' studies, Li Qi's parents opened a canteen next to their middle school.
One of the couple is responsible for purchasing and moving the goods, and the other is responsible for keeping the store cashier.
As a patient, the mother not only undertakes the family livelihood with the father, but also brings an optimistic atmosphere to the family.
Li Qi:
She is also pushed by life like me. In our store, the cashier is not able to do physical work, so she does what she can do day after day, year after year.
Reporter:
What is the stage of her physical illness?
Li Qi:
Similar to me, it is inconvenient to move.
The difference between her and me is that she usually thinks of some positive things, even a little ideal.
For example, she will grow flowers at home, move flowerpots in and out, move up and down, and move them herself.
But if it was me, I would say, Dad, help me move it, she will do many things that are not suitable for her, just like me, I just retreat when I encounter difficulties, and let others help , I admire her for this.
Reporter:
Can you understand?
Li Qi:
I understand that many things cannot be said because of my own reasons, so I feel that I should give up.
She has a better mentality. I don't know if she didn't realize it or what. Anyway, she will do what I think she can't do, and sometimes she even does well.
On Li Qi's mobile phone, he saw the flowers planted by his mother Wang Xiumei. After obtaining Li Qi's consent, the reporter called Wang Xiumei's number.
Reporter:
We just saw the beautiful flowers you planted.
Mom:
For a little hobby, our family is relatively good, anyway, there is nothing very introverted.
Reporter:
Take off your baggage and move forward lightly.
Mom:
Yes, there are many things that others can't help you, only you have to face it bravely.
I know that he is still a little bit confident, and he will inevitably encounter many setbacks. I also know that because he has been worried that he will not be able to keep up with his studies, I say you should do your best.
I often say that when you encounter difficulties, you should think about your mother's spirit of planting flowers.
Because of our disease, whether it is decadent, low self-esteem, or sadness, it is useless. To be honest, the most important thing is to stand up and face it.
"I have the strength, why not do it?"
Along the way, Li Qi also gained a lot of kindness and warmth.
Li Qi:
It may take a long way to take out the garbage when cleaning.
My classmates basically take turns to take out the garbage, and it is not my turn. Because I usually walk slowly, the class bell may have already rang to go to the toilet. I am still walking on campus, and the teacher will not particularly blame me for being late.
These little details don't seem to say anything great, but it's all a little bit of that small and great feeling.
Reporter:
When the teacher sees you who are late, he may let you into the classroom without saying anything. This very subtle gesture will make you feel very warm.
Li Qi:
Yes, I think he will feel very warm to everyone who seeks help, even if it is a very small gesture.
When Li Qi was a freshman in high school, his brother scored more than 600 points in the college entrance examination and was admitted to the clinical medicine major of Chongqing Medical University.
Two years later, Li Qi also chose to major in medicine.
Reporter:
When you decide to apply for the medical major, do you want to cure your own disease more, or do you think that a doctor can help others.
Li Qi:
Actually, I don't have much hope for my disease, so I mainly focus on giving back to the society. If I have the strength, why not do it?
When Li Qi chose to major in medicine, his brother once told him what he knew about the profession.
Reporter:
The conversation between the two of you actually represented the process of finding your future direction in life, such as the responsibility of a doctor.
Li Qi:
He said that what doctors do sometimes make a great contribution to society, but you may not have a good income. He talks about this very realistic thing.
Reporter:
What is your answer?
Li Qi:
Our answer is very normal, nothing special, we should eat or not. Anyway, he and I hope to do our best to help others.
Reporter:
But when you are young, don’t you have to dare to dream, have a little arrogance, and have a little rhetoric to motivate yourself?
Li Qi:
Indeed, I just hope that when I become a doctor, I can solve other people's problems. When people say that the doctor is too thankful for this problem, I say it's a trivial matter, and I think it's too handsome.
Reporter丨Wang Ning