They need rehabilitation and treatment sessions for 292 thousand dirhams

A rare disease deprives the twins “Hala” and “Gala” of normal life

The parents’ joy was not complete with the arrival of the twins (Hala and Ghala) in 2019, as they soon discovered that the two children had health problems, which were initially represented by not following the things close to them, and not making eye contact with the mother during breastfeeding, and after four months of their birth, it was confirmed The parents of the two children were suffering from a disease, and they were taken to many government and private hospitals in the country to know their health condition accurately, and it was found that they had a rare disease, called “a defect in the migration stage of neurons from the cerebral cortex,” which leads to a delay in motor development, and the medical report confirmed The twins (three years) need intensive rehabilitation treatment, foot splints, and a special prosthesis, to prevent spinal torsion, at a total cost of 292,200 dirhams.

The problem is that the father's financial capabilities prevent him from providing the amount of intensive rehabilitation treatment sessions, and he appeals to good people and people of merciful hearts to help him manage the cost of treatment (a solution and a cost), and open a new window of hope for them.

In detail, the father of the twins told "Emirates Today" the story of the suffering of his two daughters, saying that all the periodic examinations of his wife during pregnancy were good, and the birth of the twins (Hala and Ghala) took place in February of 2019, through a caesarean section, and after four months of Childbirth His wife noticed while playing with the twins (Hala and Ghala) that they did not follow the objects and objects that lie in the vicinity of their gaze, and did not make eye contact with her during the breastfeeding period.

The father added that his wife told him of the necessity to go to the hospital, to check the condition of the twins, and to check on their health, and indeed they were taken to a private hospital near the residence, and medical examinations were conducted, and the pediatrician told him of the need to transfer the twins to a pediatric neurologist, and they were transferred To a government hospital in Abu Dhabi, and after conducting examinations by a neurologist, it was found that there is water near the brain area, and the volume of water will decrease over time, and that the two children suffer from a delay in growth and movement, and their health condition must be monitored periodically, by undergoing sessions Physical therapy.

He continued that he was keen to follow up their health condition, and attend all physiotherapy sessions, explaining that he was working in the private sector with a salary of 35,000 dirhams, and his financial condition was good, and he was able to manage the costs of physiotherapy for the twins (solution and expensive), and he noted that their health condition is gradually improving, after Intensification of rehabilitation therapy sessions.

He added that the unthinkable happened, and his financial situation turned upside down, without warning, as the company in which he works was restructured during the month of March of last year, and his services were dispensed with, and he became unemployed, and he has no source He is the only breadwinner for his family of five children, and his wife is a housewife, and he is currently unable to provide even a small part of the costs of rehabilitative treatment sessions for his two daughters.

He appealed to benevolent people and merciful hearts to extend a helping hand to him and help him manage the cost of rehabilitative treatment sessions for the twins (halla and expensive).

neuronal migration

A medical report issued by one of the specialized centers for the treatment of children's rehabilitation in Abu Dhabi, and "Emirates Today" obtained a copy of it, stated that the twins (Hala and Ghala) suffer from a rare disease called "a defect in the migration stage of neurons from the cerebral cortex", and they need intensive rehabilitation treatment. The value of the child is 130 thousand dirhams for a year.

The report added that the twins (Hala and Ghala) are currently three years old, and they need to undergo intensive treatment sessions, to help improve their health condition for the better.

The cost of intensive rehabilitation treatment for twins is 259,200 dirhams, as well as foot splints with special shoes worth 21,000 dirhams, and a special suit to prevent any twisting of the spine at a value of 12,000 dirhams, at a total cost of 292,200 dirhams for the two girls.