Health priority

Rare diseases: three million people suffer from them in France

There are nearly 9,000 rare diseases.

© Shutterstock _ H_Ko

By: Caroline Paré Follow

1 min

On the occasion of the 15th edition of the International Rare Disease Day, we take stock of these diseases that affect children and adults alike.

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There are nearly 9,000 rare diseases and in France, three million people suffer from them.

For patients, their families and loved ones, care can be like an obstacle course, which begins long before the diagnosis is made.

Despite access to orphan drugs and active research in this area, most of these rare conditions do not benefit from a cure.

Are there specialized centers?

When is prenatal diagnosis possible?

• Pr Nicolas Levy

  , Hospital Physician and genetics researcher at

  Inserm

  in Marseille.

  Author of the book

  Rare Diseases and the Hopes of the Medicine of the Future

   , published by Buschet Chastel

• Pr Abdellah Madani

  , head of the hematology and oncology department of the 

  CHU Ibn Rochd of Casablanca

  in Morocco

At the end of the program

, we find the nutrition chronicle of

, nutritionist and director of

in Bamako, Mali. 

► All chronicles are accessible 

.

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