The girl suffers from a genetic hereditary disease since birth
Video .. 4 quasi-governmental and private institutions provide 8 million dirhams for the treatment of "Munira"
“Shaza” and “Munira” with their mother.
From the source
Munira's disease caused her to be completely unable to move.
From the source
The child «Munira».
From the source
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Not hours have passed since Emirates Today published the story of the child, Munira - Three months - Syria, who suffers from a genetic genetic disease since her birth and needs treatment at a cost of eight million dirhams, until a group of institutions and private entities in the country came to provide the full amount, To give the child hope for a normal life.
In the largest response of its kind to a disease case published by "Emirates Today", Emirates Islamic Bank provided four million dirhams, Dubai Islamic Bank provided two million dirhams, the Dubai International Financial Center provided one million dirhams, and Wasl Real Estate Company provided one million dirhams, to complete the amount needed to treat (Munira).
The girl’s father, who was overwhelmed by the joy of his family after hearing the news of the donation, expressed his deep thanks and appreciation to the donors, and said: “This big gesture is not surprising for the UAE community and its private institutions, as it is inspired by the good work of the leadership of the UAE, which is based on extending a hand of help and assistance. To everyone who needs it in this world ».
The child (Munira) suffers from a genetic genetic disease since her birth, which is represented by spinal muscular atrophy, which caused her to be completely unable to move, in addition to her rapid breathing and accelerated heartbeat, and according to Al Jalila Specialist Hospital in Dubai, the child needs a needle called Zolgensma It is a medicinal drug given to children under the age of two, as a one-time intravenous feeding, with a cost of eight million dirhams.
The girl’s family, through the “hotline” in “Emirates Today,” appealed to the people of good and merciful hearts to extend a helping hand to save her child from illness, and the response came within hours.
(Abu Munira) previously narrated the story of his daughter’s suffering with illness, to “Emirates Today,” saying: “Munira suffers from a genetic and hereditary disease, represented by spinal muscular atrophy, as a month after her birth in Sheikh Shakhbout Medical City, her mother noticed her inability to The movement is final, and the muscles are relaxed, her heartbeat is accelerating, and she is exposed to cases of suffocation, so we took her to the hospital, where she was diagnosed with this disease, and the attending physician informed me that her treatment is expensive, and not available in the country, and that after two months she will need a feeding tube so that milk does not enter The lungs, because the effect of atrophy began to affect swallowing and lungs.
He added: “My daughter’s illness made me in a bad psychological state, as I have another girl named (Shaza - eight years old) who suffers from the same disease, and she was diagnosed in Mafraq Hospital previously (Shakhbout Medical City), when she was one and a half years old, and the doctors informed me That there is no treatment, and these patients have a certain age due to their weak immunity, and then they die, and when my daughter (Shaza) reached five years old, they told us that there is a treatment for her through needles, given in the spine every three months for life, and the cost of the needle One 300 thousand dirhams, and this is above my financial capabilities. ”
He continued, "She lives on a respirator, and cannot move, as she missed treatment, and her condition is dangerous. My hope remains in the dream of saving my daughter Munira from illness and her treatment, which is close to realization."
• The largest response of its kind to a disease published by "Emirates Today".