Patients recommend strengthening support for "AYA generation = younger generation cancer patients" November 7, 5:20
“Because the younger generation of cancer patients may not be able to fully discuss their physical and mental distress, or may abandon treatment due to financial burden, we will create a specialized consultation desk and financial relief system. It should be. ”
I hope that cancer patients and researchers will summarize these specific support measures required by the government as recommendations and use them to improve cancer control measures.
The recommendations were compiled by the members of the research group that conducted a fact-finding survey of cancer patients nationwide together with representatives of cancer patient groups, and "dissemination of information to patients", "patient employment support", and We are proposing concrete measures that the national government should take for many issues, such as "countermeasures for rare cancers," which have an extremely small number of patients.
Of these, regarding the support for patients in their late teens to 30s, which is called the "AYA generation," it is not easy to obtain information because there are few patients around, and in the survey, it was difficult for medical staff to feel physically and mentally. It has become clear that we have not been able to fully consult with you.
In addition, about 53% of people have an impact on their lives due to financial burden, and about 11% have changed or abandoned treatment, which is more than other generations, and they regret it because their living base is fragile. There is also a risk of making a decision.
For this reason, the proposal calls for the establishment of a consultation desk specializing in this generation and the establishment of an economical relief system.
Shinsuke Amano, chairman of the Japan Federation of Cancer Patient Groups, who participated in making proposals, said, "I also got cancer in my twenties, and I felt lonely because I couldn't consult with others, but I was able to make proposals based on the data. Is of great significance. I want you to take it as the voice of each patient. "