Chinanews.com, March 27th. A few days ago, with the last box of phenylalanine-free formula shipped from the United States to China, an emergency rescue for Chinese PKU babies (special infants with phenylketonuria) was sent. The action finally came to an end.
A month ago, when the new crown pneumonia epidemic was raging in China, Mead Johnson China received a request for help from the Pansy Rare Disease Alliance-affected by the blocked logistics in the epidemic, a batch of phenylketonuria babies in China were facing the crisis of "feedout" .
Phenylketonuria (PKU for short) is one of more than 7,000 rare diseases, and it is one of the few treatable congenital genetic metabolic diseases. Children with PKU must take milk powder or special foods that do not contain or contain only a small amount of phenylalanine for life to intervene treatment, otherwise, the phenyllactine and keto acid accumulated in the body will damage the development of the brain and nervous system, which is serious Affects intellectual development. Therefore, PKU babies are also called "children who don't eat fireworks on earth."
In order to help these PKU babies and their families solve their urgent needs, Mead Johnson set up rescue teams with charismatic rare disease alliance, Smile Tomorrow Charitable Foundation and other public welfare organizations for the first time. On the one hand, it quickly mobilized foreign PKU milk powder stocks and supplies for urgently needed patients. Urgently submit to the State Administration of Market Supervision and Administration an application for the import of overseas PKU milk powder donations.
The picture shows the PKU milk powder received from the US
With the efforts of the government, public welfare organizations, enterprises, and volunteers, the expedited review of related products was completed within one week, and special product import approvals were successfully obtained. Crossing over half of the earth, it took more than a month. Mead Johnson China has donated more than 1,000 cans of PKU milk powder. It has successfully helped 168 Chinese PKU babies to alleviate their dietary difficulties and ensure the safety and health of special babies.
Enda Ryan, CEO of Mead Johnson Greater China, said about the emergency rescue operation: During this rescue operation, each participant embraced the firm belief of "providing the best start in life for the baby" to overcome There are many obstacles and the best efforts have been made. We will make every effort to support the needs of every Chinese mother and baby, and help them overcome difficulties.
Wu Kun, founder of the Pansy Rare Disease Alliance, said, "The Pansy Rare Disease Alliance has been working hard to provide support and services to patients with rare diseases. Under the epidemic, it is incumbent on us to unite many parties to solve the urgent needs of PKU families."
Tang Haiyan, the secretary-general of Smile Tomorrow Charitable Foundation, who participated in this emergency rescue operation, said, "When the country is in trouble, everyone is a loving volunteer. In this epidemic, I saw the sense of responsibility and responsibility of all walks of life and I am very grateful. The efforts and efforts of all parties. "(End)