Rare disease drug accessibility survey: The drug is covered by medical insurance but not in the hospital?. February 29 is the 17th International Rare Disease Day.
Many interviewees said that although some innovative drugs for rare diseases have been included in medical insurance through "national negotiations", accessibility is still insufficient due to multiple reasons. The situation encountered by the above-mentioned patients means that the "multi-level protection mechanism for rare disease" that the industry has called for for many years has not yet been realized.