Patients with ALS denounce premature deaths due to disease due to the lack of money to cover their care: "It is not fair". Patients with Amyotrophic Lateral Sclerosis (ALS) "do not have time" and the disease they suffer from poses unresolved social and health needs.

This Tuesday, in Congress, the ConELA association has denounced "precipitous deaths" of people with this disease. "ALS does not wait, ALS does not now! Not tomorrow!"