First Spanish patient to receive treatment for her rare disease: "30 years ago a medication changed my life". Lucía Badía is one of the three million people who suffer from a rare disease in Spain.
She has no pain, after-effects or symptoms that reduce her quality of life. For her, the Gaucher disease she suffers from is "something that walks with me", a reality that is there but does not create obstacles or barriers. "I was born with a star," she says - because although she knew the bitterest side of the disorder, she soon had tools to deal with it.