See Agneta's everyday life with the disease cystic fibrosis in the clip above.
Agneta Attar is one of roughly 700 people in Sweden today living with the diagnosis of cystic fibrosis (CF).
When she was born, her parents were told that she would only live until she was about 16 years old.
That was 47 years ago.
- I have always lived on borrowed time.
It's a battle I can't win.
Until now, when a completely revolutionary drug has arrived, she says.
The new medicine is an American invention, which, unlike the medicine available today, treats the underlying problem of the disease, and not just slows it down.
The medicine is approved in the EU and the USA and is given to patients in 27 countries, including Malta, Finland, Spain, Denmark, Great Britain, Portugal, the USA and Italy.
"Too high price"
But in Sweden, the responsible authority Tandvårds- och lækkemenförmånsverket, TLV, has decided that the medicine should not be included in the high-cost protection.
This means in practice that Swedish patients will not be able to access the medicine.
- We have had to say no because the price has been too high, says Jonathan Lind Martinsson, head of unit at TLV who was involved in making the decision about the medicine.
"Price tag on my life"
The list price for the medicine is roughly two million per patient and year, but it is almost always negotiated down between the company and the country in question.
What the price ends up being is a secret, but the company tells SVT that it has not requested more from Sweden than from the other countries where the medicine is already used.
- It feels like they are putting a price tag on my life, says Agneta Attar.