The girl "Munira" enters a new stage of recovery..and her motor abilities are improving..Video

The Syrian girl, Munira, entered a new stage of recovery, with a general improvement in her mobility, after about a year receiving the most expensive injection in the world (eight million dirhams) for her treatment of spinal muscular atrophy, and undergoing an integrated rehabilitation program by the Zayed Higher Organization for People of Determination.

"Emirates Today" had published the story of the suffering of the little girl, Munira, with spinal muscular atrophy, early last year, and 4 different parties guaranteed her treatment, so that she could receive her treatment, the most expensive in the world.

The father of the child, Ahmed Al-Ibrahim, confirmed that his daughter was finally able to move new parts of her body, and was able to sit for the first time after helping her, as well as a general improvement in her motor abilities, especially after undergoing the rehabilitation program by the Zayed Higher Organization for People of Determination, which provided her with all the support. .

He thanked all the parties contributing to the treatment and rehabilitation of his child, explaining that without these efforts his daughter would not have experienced improvement, stressing that those who live in the UAE enjoy support and care that cannot be found anywhere else.

For her part, the head of the health care department at the Abu Dhabi Center for Care and Rehabilitation, affiliated with the Zayed Al-Ali Foundation for People of Determination, Amina Al-Yafei, stated that the little girl, Munira, began treatment sessions last October, when she was diagnosed with spinal muscular atrophy, a genetic disease that affects the nerves that emerge from the spinal cord. The sufferer has a general weakness in the body's motor muscles, breathing and swallowing muscles.

She added that as a result of the nature of the disease, the girl suffered from severe weakness in the muscles of the back, abdomen, and head control muscles, and she was unable to raise her head or rotate and flip, and the movement of the lower and upper limbs was very weak.

Al Yafei added that the sessions focused on exercises to strengthen muscles, exercises to maintain range of motion to prevent any deformities in the joints, and exercises to improve head control and improve sitting balance.

She stated that thanks to the treatment programs that the girl underwent, she showed a remarkable response to the treatment, and became able to control the head, and her motor abilities improved, especially the movement of the upper and lower extremities, and she also began receiving occupational therapy services, and speech, and a joint plan was developed to improve her communication skills. And the use of hands when sitting while doing various activities.

Four government and private agencies sponsored the treatment of the girl, Munira, as the Emirates Islamic Bank provided four million dirhams, the Dubai Islamic Bank provided two million dirhams, while the Dubai International Financial Center provided one million dirhams, and Wasl Real Estate provided one million dirhams.

The girl (Munira) was born with a hereditary genetic disease, represented by spinal muscular atrophy, which caused her to be completely unable to move, as well as rapid breathing, rapid heartbeat, muscle relaxation, and exposure to cases of suffocation, and after examinations and analyzes, she was diagnosed her rare disease.

Doctors confirmed that her treatment is expensive, and is not available in the country, and that after two months she will need a feeding tube so that milk does not enter the lungs, because the effect of atrophy has affected even swallowing and the lung, which did not happen thanks to her obtaining treatment after four parties donated eight million dirhams, the price of Syringe.

The girl "Munira" enters a new stage of recovery... and her motor abilities are improving... # Emirates_Al-Youm pic.twitter.com/g0zGCKNBmp

- Emirates Today (@emaratalyoum) March 8, 2022

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