The unusual disease cystic fibrosis is lifelong.
In short, it means that the body produces harmful mucus which over time destroys the lungs and thus shortens life.
Today, the disease is treated by relieving the discomfort and for many, the disease requires lung transplantation.
However, there is a new drug that can prolong life and make patients feel better.
But the Swedish Dental and Pharmaceutical Benefits Agency, TLV, has said no to subsidies in Sweden.
The reason: It's too expensive.
However, exceptions are made for individual patients who are particularly seriously ill.
Frida Jonsson Ceder in Strängnäs has a lung capacity of 45 percent as a result of the disease and is close to needing new lungs.
She is now one of the few who have access to the drug.
Join in when Frida starts her medication and hear her talk about her hopes for the future in the clip above.