Chinanews.com, Beijing, May 9th (Reporter Du Yan) On the occasion of "World Lupus Day" on May 10, "Friends with Butterflies and Rebirth" 2021 World Lupus Day Disease Awareness Public Education Campaign and Lupus Nephritis Disease Science Popularization & Standardized Diagnosis and Treatment Experimental Class was launched in Beijing.
Experts from Peking Union Medical College Hospital advocated raising public awareness of lupus nephritis, advocating standardized treatment of patients, and returning to a healthier life as soon as possible.
This event was hosted by Beijing New Sunshine Charity Foundation and supported by Roche Pharmaceuticals China.
Today, the reporter learned from the event that this event brought together various forces from all walks of life in the society to carry out various forms of lupus disease popularization activities in multiple cities across the country through online and offline links.
Zeng Xiaofeng, director of the Department of Rheumatology and Immunology of Peking Union Medical College Hospital, said that systemic lupus erythematosus is an autoimmune disease characterized by multiple organs and multiple systems.
Lupus nephritis is caused by systemic lupus erythematosus involving the kidneys. It is one of the most serious complications of systemic lupus erythematosus, accounting for about 50% to 70%. It is also one of the main causes of death in patients with systemic lupus erythematosus. .
He pointed out that the most common clinical manifestations of lupus nephritis are proteinuria, hematuria and renal tubular damage.
If lupus nephritis cannot be effectively controlled, 17% to 25% of patients with lupus nephritis can progress to end-stage renal disease, requiring renal replacement therapy (dialysis or kidney transplantation), which brings heavy burden and great pain to patients and families .
However, Professor Zeng Xiaofeng said that although lupus nephritis cannot be completely cured at present, adherence to long-term standard treatment can effectively control the disease, help maintain kidney function and prevent it from progressing to chronic kidney disease. The data also shows that the incidence of lupus nephritis progressing to chronic kidney disease is declining. "It is particularly gratifying that the 2020 medical insurance drug catalog has been updated, and a batch of innovative drugs have been included, which will effectively reduce the economics of long-term treatment for patients. Burden to help patients better return to their families and society.
Among patients with lupus nephritis, 81.6% of patients are female patients between 14 and 44 years old. Lupus nephritis can cause harm to women's ovarian function and physical health.
Tian Xinping, chief physician of the Department of Rheumatology and Immunology of Peking Union Medical College Hospital, said that he would try his best to take some measures to protect patients' ovarian function, such as the awareness of drugs, especially the continuous emergence of some new drugs, to protect ovarian function.
At the same time, pay attention to patient management. For example, through the online platform to regularly send disease-related knowledge to patients, let patients understand how to do well in daily self management and precautions in daily life, and let patients regularly evaluate the quality of life, and remind them For patient return visits, etc., science popularization is carried out through scientific and technological means to strengthen patient self-management.
As a chronic disease that requires long-term treatment, patients with lupus nephritis are often under both physical and psychological pressures, and need more care and encouragement from family members, friends and all sectors of society.
As the organizer of this event, Liu Zhengchen, the founder, vice chairman and secretary-general of Beijing New Sunshine Charity Foundation, expressed the hope that through this charity event, the power of public care and support, the power of expert authority and science popularization will be condensed to help improve the whole society. Attention to lupus nephritis disease, care and care for more lupus patients, help patients embrace a better new life as soon as possible.
At the same time, the public welfare program of lupus nephritis disease was launched at the same time.
It is reported that in addition to Beijing, the charity line will link up with Xi’an, Chengdu, Wuhan, Guangzhou, Jinan and Hangzhou to carry out various forms of lupus nephritis education and education activities, using online and offline channels, and through easy-to-understand video animations and brochures. , Free clinics, etc., to spread the science of lupus nephritis disease prevention and treatment to front-line doctors and patients, to help improve the public and patients’ disease awareness, and to care for and care for more lupus patients.
In order to further improve the standardized diagnosis and treatment level of lupus nephritis in various regions of China, the experimental class project of standardized diagnosis and treatment of lupus nephritis was also launched at this event.
Taking Hefei City in Anhui Province and Shijiazhuang City in Hebei Province as pilot projects, through the resources and services of hospitals and patient organizations, building a bridge for doctor-patient interaction, giving full play to the initiative and cohesion of the patient group, and allowing patients to participate more actively in popular science learning Support each other in all-round activities such as standardized diagnosis and treatment, life and nursing, and jointly establish the confidence of the "butterfly friends" in treatment.
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