"I was going to go crazy ... I told doctors: 'And it won't be cancer?' And they answered me: 'Madam, are you crazy?' Year after year. They got to diagnose Izan flu, anorexia, pneumonia. They said I had psychological problems. That he did everything to get my attention. They told him, in front of me: 'You have to stop calling your mom's attention.' I insisted with cancer, I was afraid that what I had, the giant mole I was born with, would end in ... And they would say to me: 'Madam, if you continue with that, cancer is going to cause you, don't be obsessive . ' They said it was me who was going to cause cancer.
Until Izan Adam died. Of cancer. With eight years, in February 2016.
The alleged pneumonia, when the child had the CT scan so many years negligently postponed, turned his face like an irreversible melanoma in the right lung . With "large amount" of metastasis in chest, skull, liver, kidney, pancreas and bones, narrates, crying, his mother.
A cancer, in short, that grew and parasitized her son while she claimed care that arrived five years late, and now worth 175,000 euros in compensation from the insurer of the Madrid Health Service , according to sentence (still actionable) of First Instance 71 of Madrid. «And notice that, once everything was discovered, he was hiding it, protecting him. But in recent months, when his lungs were already hooked to a fan 24 hours a day, and he to a wheelchair, the poor man told me:
- Mom, I'm dying.
And I answered:
- No, you are healing.
At least now, wherever I am, I know Izan has no pain.
Diana, her mother, went on pilgrimage for years between the Hospital of Fuenlabrada (Dermatology), the Twelve of October (Oncology and Pulmonology) and La Paz (Plastic) - «please put them all, let us know where we went and where everything happened» -, without anyone noticing that the child suffered a melanoma.
At eight hours after birth, on August 8, 2007, Izan Adán Fernández was again in an operating room. He was born with a huge mole that occupied 95% of his back : what is called a giant nevus, with ramifications in his chest . «They told us that it was necessary to remove it little by little, that it was an organism as if it were asleep, that it listened to everything, but how controlled one could live with it, although sometimes it could degenerate into a melanoma. There was a family history: my mother had suffered a melanoma . I never got rid of that fear, ”recalls Diana, a 34-year-old nursing assistant today.
The scientific literature says that a giant melanocytic nevus - that is its scientific name - like the one that occupied Izan's entire back may become melanoma, and a 2010 radiological plate, when the child was two years old, evidenced "a shadow" in the lung. But from the time the child began to shrink in 2010 until June 2015, neither in the Fuenlabrada Hospital, nor in the Twelve of October, nor in La Paz did they find mother and son who made them a CT scan. Not even in recent months , with a large spill between the lung and the pleura.
Operated eight times in its first three years
After being born with the nevus, Izan was operated on up to eight occasions in La Paz, between 2008 and 2011, to remove the mole, “always waiting for the skin to have adequate elasticity,” explains Diana, assisted by lawyer Álvaro Sardinero , on behalf of the Patient Advocate Association .
The key occurs in July 2010, when your pediatrician observes an "alteration" in a chest x-ray about which, as stated in the clinical report of the Fuenlabra-da Hospital, and the doctor "is not at all clear", It can be read in the medical report itself. However, this document continues, "Rays is notified [of the Fuenlabrada Hospital], they review the rx and do not observe nodular lesions."
Three years later, given the reality that the little boy, then five, has unclear respiratory problems, another chest x-ray is taken at his health center, and "more intense" images are referred to in the lower left lobe of the lung. Nothing was done equally, although Diana then repeated to the doctors that her son had a basic condition, the nevus , which could degenerate into melanoma. "They laughed at me, treated me with condescension," he explains.
In February 2015, five years after the first symptoms, he suffered a spill in the pleura with an image of condensation in the same place. He is diagnosed with pneumonia, antibiotics are prescribed and the fever disappears, but not the image. At this point, already, the judge sentences that the TAC was inescapable, but still nobody makes the decision.
"A doctor said he should have had a CT scan"
«Much later, when Izan had already died and I went to look for his documents, a doctor from the Twelve of October, of Pneumology, admitted that that February, when my son was there, she had commented that Izan had to have a CT scan, but that his partner did not consider it appropriate . Who knows if my son would have been saved if they do it?
The melanoma was already metastasizing Izan's body. “There I already told them that my son had cancer, that it could not be anything else, but he only managed to look like a crazy mother . I took the same pulmonologist with the file of my son's underlying disease, and that was the one who told me, very calmly, that the children do not have cancer, that I do not worry or else the cancer would be caused by me ».
When the cancer was discovered in July 2015, when the child was already losing weight, with abdominal pain and fever, practically evicted - with a CT scan in which “a large mass that occupies almost the entire left lobe occupies, entering inside of the bronchus »- the Fuenlabrada Hospital informs Diana« that there is no possible treatment , that there is nothing to do. We set up a Facebook page to ask for help ... ».
There it was evident, in the Twelve of October, that the melanoma was not of an aggressive malignancy , which would have allowed a treatment to be detected in time. The little boy had virtually no more than palliative treatment. The day after his birthday, in August 2015, he lost the mobility of his right leg and remained in a wheelchair. He died, finally, on February 13, 2016.
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