She spoke about a large number of complaints regarding the registration of a drug for the treatment of SMA.

“We have repeatedly appealed to the Ministry of Health. Now the issue of registration of the drug Spinraza, the only one for the treatment of this disease, has been resolved! ”Wrote Kuznetsova.

At the end of May, the press service of the Ministry of Health told RT that the government was working on the production of new forms of medicine that families with palliative children needed.