Jordi Sabaté Pons' last message on social networks once again shakes consciences. "In two minutes I'm already dead," he writes on X (formerly Twitter) "We ALS patients pay to breathe, it's not fair," he says.

For years he has become an activist to give visibility to this degenerative and incurable disease. "The only thing I feel bad about is my illness. We ask for help so that the State covers this vital need. It's fair, right?"