Adalia Rose Williams , the famous youtuber who inspired the Benjamin Button movie by suffering from
Hutchinson-Gilford
syndrome in real life
, died this Wednesday at the age of 15.
Adalia Rose
was born with progeria also known as
Hutchinson-Gilford syndrome
, children who suffer from it usually lead a normal life during the first months, but, as they grow older, the disease
accelerates their aging
and they usually have a life expectancy of 13 years .
"She entered the world quietly and left quietly, but her life was far from quiet and peaceful. She touched millions of people and left the biggest mark on everyone who knew her.
She no longer suffers
and is now dancing with all her might."
the music he loves," reads the statement published by the family after his death.
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The illness suffered by
Adalia Rose
inspired the film
The Curious Case of Benjamin Button
played by
Brad Pitt
, in which the story of a man who would be born with the body of an 80-year-old person is told and who, over time, becomes younger.
"I really wish this wasn't our reality, but unfortunately it is.
We want to say thank you to everyone who loved and supported
her. Thank you to all of her doctors and nurses who worked for years to keep her healthy. The family now wishes to mourn this great loss in private," adds the note from Adalia Rose's family.
Adalia
's mother
, Natalia Pallante, told the
New Zealand Herald
in 2018 that doctors realized something was wrong within months of her birth.
"When
Adalia was born,
I think she was about a month old and they weren't happy with her growth," he said.
"That was one of the symptoms that appeared first and then it was also that the skin on her belly was very tight and it had a different look."
Three months later he received the diagnosis.
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