<Anchor> This



is a pledge check order to check the main pledges of the presidential candidates.

Today (the 7th) is a health care pledge, and let's take a look at how it tries to relieve the burden of expensive drugs for patients with severe and rare diseases.



This is Cho Dong-chan, a medical reporter.



<Reporter>



Chani Eun has been fighting leukemia since 2014 when she was 6 years old.



[The late Cha Eun-chan: Smile brightly on the day I am cured.

Why do I cry when I think of my mother?

I'll give you all the good things in this world.

I love you mom.]



After 3 years, hope has grown.



82% chance of a cure A new drug has appeared.



The drug cost 500 million won, and Eun-chan's house had to move.



[Lee Bo-yeon / late Cha Eun-chan's mother: There is a drug that can save the child, but now I have to use it, so we urgently sold the house to make money.]



Eun-chan passed away last year.



He couldn't even write a New Testament.



Permission for domestic use was granted while he was alive, but the sale failed due to the delay in price negotiations between the government and pharmaceutical companies.



Effective treatments are too expensive and too slow for critically ill patients.



[Ahn Jin-seok/Professor of Hematology and Oncology, Samsung Seoul Hospital: (Patients) have to explain economic aspects one by one. It's a very painful position to face.]



We checked the relevant pledges of the presidential candidates with the Korean Patient Organizations Association.



Candidate Jae-myung Lee said that he would set up a separate fund to secure expensive drugs but get approval from doctors in advance to prevent over-prescription.



[Ki-Jong Ahn: It is being strictly enforced, so I am not yet satisfied with the prompt request from a patient with severe disease.]



Candidate Seok-Yeol Yoon allows patients to use it first, but sets the price later and evaluates the cost-effectiveness afterwards. I decided to write it or not.



[Ahn Ki-jong: Because there are cases where everyone dies after waiting for one or two years, it is not enough to move it up by several months.]



Candidate Sang-Jeong Shim has introduced an upper limit system that prevents the co-payment of all medical expenses from exceeding 1 million won.



[Ahn Ki-jong: The candidate promised to introduce it directly, but it is not mentioned in the pledge book.] In



order to quickly apply expensive treatments to health insurance, minor diseases must be excluded from insurance coverage or the entire insurance premium must be raised. .



Millions or tens of millions of people will lose.



On the other hand, there are only tens of thousands of patients with rare diseases like Eun Chan.



This is why promises for treating severe and rare diseases are not specifically announced during the presidential election.

[Lee Bo-yeon / late Cha Eun-chan's mother :



Children are dying, but their voices are so small that no one seems to listen.]