It's an unusual request.

Most want to meet football star Cristiano Ronaldo or at least get an autograph from singer Adel Tawil.

So what Tobi's mother wrote on the wish list sounds far more down-to-earth, maybe even a bit boring at first glance: fly screens.

Really good ones that close tightly and don't break with the first draft, after all.

But what child would want fly screens?

Theresa White

Editor in the Rhein-Main-Zeitung.

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The answer is very simple: Tobi.

Tobi is ten years old.

He lives in Wiesbaden, on the outskirts, overlooking a meadow and fields.

A beautiful corner.

It's just stupid that mosquitoes constantly buzz into his room and bite him.

Once it almost became his undoing.

Because Tobi can hardly move.

Once last summer, when an insect flew into his mouth, his throat swelled and he almost choked.

That can't happen now.

For a few weeks, Tobi has had brand new fly screens on his window and all other doors and windows in the apartment.

Cost point: 1700 euros.

Tobi's mother, single parent Michaela Kirsch, could not have afforded it.

That's why she asked the MainLichtblick association to fulfill Tobi's important wish.

So craftsmen came and installed the bars.

Now a gentle breeze is blowing through Tobi's room with the green blinds and hundreds of cuddly toys.

Already 130 wishes fulfilled this year

MainLichtblick is based in Frankfurt and has been fulfilling the wishes of seriously ill, traumatized and disabled children in the Rhine-Main area with his team of seven since 2013;

A few days ago, the association once again collected money for this at its charity gala.

The guests in the Villa Bonn were asked to contribute something.

You can also donate to a specific request.

Last year more than 100,000 euros were raised.

The employees meticulously document what the money is used for.

MainLichtblick has already fulfilled 130 wishes this year.

Each has a little story.

Because the moment when a dream comes true is also something special for the wish-fulfillers: they are confronted with serious illnesses every day.

So it's good to see the affected children smile.

"I can't do anything about the disease, but I can create a small ray of hope," says Frank Fechner, Managing Director of MainLichtblick.

The team around him and Brigitte Orth records the successes.

Also present: 14-year-old Frida from the Ukraine.

Before fleeing the war zone, she badly injured her knee.

She needed an operation, but the clinic didn't want to operate until it was clear who would pay for it.

MainLichtblick jumped in spontaneously.

Frida now has a functioning knee again.

The fulfilled wish will accompany her for the rest of her life.

But there were also completely different wishes in the past: Ronaldo was of course already there, but also a tablet to be able to take part in homeschooling, an internship on the farm, an exoskeleton for 10,000 euros so that a child can walk again, a therapy dog or equine therapy.

And there's Tobi and his fly screens.

Tobi suffers from childhood dementia, that's what his diagnosis is commonly called.

The official name of the disease is NCL2, late infantile neuronal cereoid lipofuscinosis (type 2).

It is a so-called storage disease: the brain cells can no longer break down certain waste products.

They store it, litter it, so to speak, and die off.

As a result, the child unlearns all mental and physical abilities and eventually becomes as helpless as a newborn.

The NCL patient eventually loses control of their bodily functions, requires artificial feeding, and is a 24-hour care case.

This is already the case with Tobi.

A feeding tube supplies him with food.

The NCL Foundation assumes that in Germany around 700 children suffer from NCL, worldwide it is assumed that 70,000 are affected.

The disease is not yet curable.