Member Du Liqun

　　A light of hope for rare disease patients

　　"Every life is precious, and every patient needs care." In December last year, the adjustment results of the 2021 National Medical Insurance Drug Catalog were announced, and an injection drug for the treatment of spinal muscular atrophy successfully entered the new version of the medical insurance catalog. From 700,000 yuan a needle down to 33,000 yuan.

Upon hearing the news, Du Liqun, the head nurse of the AIDS Department of the Fourth People's Hospital of Nanning City, Guangxi, was very excited and gave her heartfelt praise.

　　Member Du Liqun has been concerned about the protection of the right to life and health of patients with rare diseases for many years.

"There are few clinical cases of rare diseases and little treatment experience, and there are problems such as high misdiagnosis, high missed diagnosis, and difficulty in medication." To this end, member Du Liqun visited front-line medical workers, patients and their families, and drafted a proposal on further strengthening the medical treatment of rare diseases. Security proposal.

　　"The survey found that the current society's understanding of rare diseases is not sufficient. About 80% of rare diseases are genetic diseases. If relevant screening can be carried out in advance, the incidence of rare diseases and long-term health damage can be reduced." Member Du Liqun said, The prevention and treatment of rare diseases should be mainly based on prevention, and should be checked from the source, and relevant content such as rare disease prevention should be set up in premarital examination, obstetric examination, newborn screening and other links.

　　"Continuing to promote the entry of more rare disease drugs into the national medical insurance drug list and reducing the treatment cost is also a key part of promoting the treatment of rare diseases." After visiting many rare disease patients, member Du Liqun wrote the following paragraph in the research notes: "At the beginning of this year, I saw a 6-year-old child with a rare disease. His mother happily told me that the injection dropped from 700,000 yuan to 33,000 yuan per injection, which gave the whole family hope. The smiles have also increased. I am very encouraged after hearing that.”

　　Member Du Liqun learned that before the price reduction, only 2 patients had been injected with this drug through Guangxi Maternal and Child Health Hospital. After the price reduction, more than 20 patients have started using it, and more patients are registering for the drug.

"Improving and improving the multi-level medical security system for rare diseases and setting up 'rare disease diagnosis and treatment fee packages' in medical insurance will help reduce the burden of drugs for rare disease patients and improve the quality of life of rare disease patients," she said.

　　This year's National Two Sessions, member Du Liqun actively shared his research and thinking.

She said: "In recent years, all parties have paid more and more attention to the treatment of serious and common diseases. I hope that more and more people will care for patients with rare diseases and give them more warmth and help."

　　(Reporters Ma Suwei and Pang Geping)

　　Representative of Jiangji Village

　　Committed to inheriting and developing Tibetan medicine

　　At 8:00 on February 22, it was just dawn on the plateau, and there were already many patients waiting outside the clinic of Jiang Jicun, the deputy director of the Tibetan Hospital in Ganzi Tibetan Autonomous Prefecture, Sichuan.

　　"Since the 18th National Congress of the Communist Party of China, the Party and the state have attached great importance to the development of ethnic medicine. The hardware facilities of Tibetan hospitals are getting better and better, the comprehensive service capabilities have been continuously improved, and the people's recognition and trust in Tibetan medicine have also increased." Jiang Ji Village The representative happily talked about the scene of the previous visit and said, "It makes me feel more excited and more motivated, and I have more confidence and determination to carry forward Tibetan medicine."

　　"Through in-depth research, I found that there is a large demand for Tibetan medicine services among the people in Sichuan and surrounding areas, but the supply capacity of Tibetan medicine services is relatively insufficient." The representative of Jiang Jicun introduced that he actively promoted the characteristics and advantages of Tibetan medicine, and strived to win relevant departments for Tibetan medicine. Support for the development of the pharmaceutical industry.

At present, the construction of Sichuan Tibetan Medicine Hospital has been included in the action plan for building a strong province of traditional Chinese medicine.

He and his team also actively participated in the "Traditional Chinese Medicine Clinic Around" service activity implemented across the province, letting everyone know where there are Tibetan medicine clinics around and which diseases can go to Tibetan medicine clinics for diagnosis and treatment.

　　In the past two years, representatives of Jiangji Village have also actively participated in the prevention and control of the epidemic.

"I remember that after the outbreak in Daofu County, I organized a Tibetan medicine expert team to rush to the front line of anti-epidemic. We have allocated Tibetan medicine for the age and physical condition of the close contacts of the new coronary pneumonia, and accumulated more than 500 centralized isolation and more than 6,000 home observers. Tibetan medicine has been distributed to help alleviate the epidemic.” Representative Jiang Jicun said that after participating in the fight against the epidemic, he realized that Tibetan medicine should not only play a greater role in basic medical and public services, but also in responding to public health emergencies. contribute.

To this end, he actively promoted the incorporation of Tibetan medicine into the public health emergency prevention and control system.

　　"What I am most concerned about is the inheritance of Tibetan medicine. At present, there are not many schools that train Tibetan medicine talents, and remote areas are not attractive to young people." Representative Jiang Jicun said that he will continue to support the development of Tibetan medicine at the National Two Sessions this year. Inheritance and development drum and call, and hope that the cultivation of Tibetan medicine talents will receive more attention and support.

　　(Reporters Shi Yiqi and Wang Mingfeng of this newspaper)

　　Representative Huang Aimin

　　Let more doctors take root in the grassroots

　　Representative Huang Aimin, deputy secretary of the Party Committee of Fujian Medical University, is very concerned about the construction of grassroots medical and health personnel.

From village clinics to township health centers, to county hospitals and prefecture-level hospitals, Huang Aimin has visited primary hospitals in Ningde, Sanming, Nanping and other places in Fujian.

　　"The grassroots medical and health personnel is the basic force of my country's medical and health service system, and it is related to the health of every public." Representative Huang Aimin introduced that in recent years, relevant departments have actively introduced policies and measures to promote the training of grassroots medical and health personnel.

However, there are still insufficient medical and health personnel in some grassroots areas, and there are problems of "can't recruit" and "can't keep".

For example, from 2017 to 2021, Fujian Medical University has trained 531 clinical medicine graduates, of which 75 have terminated their contracts.

"The training of trainees from the Orientation Committee of Clinical Medicine is an important measure to deepen the medical reform, and it is also an important guarantee to promote the implementation of the hierarchical diagnosis and treatment system. But the facts show that the orientation medical students have not fully served the grassroots." Representative Huang Aimin said .

　　In order to promote the construction of grassroots medical and health personnel, under the promotion of Huang Aimin, in July last year, Fujian Medical University and the People's Government of Minhou County, Fuzhou City decided to jointly build a national-level general medical personnel training demonstration base.

Fujian Medical University gives full play to its advantages in education and medical resources, vigorously supports the construction of demonstration bases, and builds a pilot project of comprehensive health reform at the grass-roots level where "minor diseases can be treated, serious diseases can be recognized, critical illnesses can be converted, and chronic diseases can be managed", and further improve Minhou County. Primary medical service capacity.

　　Representative Huang Aimin has been studying the experience of various places. For example, Sanming City has strengthened the education of compliance awareness in the orientation training of new medical graduates, improved the treatment level of grassroots positions through medical reform, provided better vocational training for young doctors, and broadened the space for career development. The employment rate of targeted medical graduates is relatively high.

　　Based on these experiences, representative Huang Aimin put forward suggestions at this year's National Two Sessions: the medical school should cooperate with relevant local departments to further improve the education of targeted students' integrity and awareness of contract performance, and strengthen rigid constraints on graduates' contract performance when implementing policies.

Local governments should introduce more incentives and safeguards to attract graduates to work, and actively promote "going down".

In addition, it is necessary to promote the innovation of the management model of primary medical talents, pay attention to their personal growth and career development, and strive to achieve "retention".

　　(Reporters Shen Shaotie and Zhong Ziwei)