• Stories Noah, the girl with the seven rare diseases: "I can't remember a day without pain"

Noah Higón's birthday gift has been to listen to himself again.

So far, there have been different rare diseases that life has added to it over time: seven to be exact.

The syndrome of the inferior cava baja, that of the nutcracker, Ehlers Danlos, Wilkie, Raynaud, May-Turner and gastroparesis are the diagnoses that have been pronounced in his multiple visits to the health center.

In the latter the result has been a victory.

A septic shock derived from the pathologies took his hearing in November 2020;

several months later he has managed to recover it.

"Noah do you hear me?", Asks the doctor, while she visibly excited nods and says:

"I can hear".

Far from enclosing himself in the characteristic bubble of protection to face diseases, Higón was born to suffer, but also to tell the world everything he can create based on the pangs of pain that go through him.

Jurist, political scientist, writer and

influencer

, she has not hesitated to share the success of the cochlear implant with her followers.

"All Instagram accounts are from wonderful lives, right? Well, mine is not like that. There are many people whose life is not a continuous party," he told this medium in February of last year.

However, this August 5 has become a party for her and her family.

A celebration of "noises and beeps with a taste of metal", as he explains in his networks.

Noah Higón

At his side and also visibly moved is Susana, his mother.

"I love you daughter, I love you"

, a few simple but forceful words that, together with a squeeze on your daughter's arm, show happiness in the fullest state.

"The worst thing is to see the death reflected in the eyes of your mother while she watches you on a cold stretcher knowing that your life is fading every day," she describes in her book

Of what pain are your eyes.

The bond between them is enormous and is bound by hope.

The operation to which he underwent on June 14, to put the internal part of the corneal implant, has been a success.

Just a few hours ago, Noah Higón regained one of the things that the "rare syndromes" had taken from him: breaking the barrier of silence.

According to the criteria of The Trust Project

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