Stalin's lawyer Gurevich wrote a complaint about Lydia Moniava's actions in early January.
Moniava is known in the charitable community as the founder and director of the House with a Lighthouse children's hospice.
Last spring, she became the guardian of 12-year-old Kolya, a boy with profound physical and mental disabilities.
The child lives in Moniava's apartment.
Despite the fact that Kolya does not move on his own, does not speak, and cannot eat on his own, Lydia often takes the boy with her to various events, brings him to school for lessons, travels with him and even flies by helicopter.
Gurevich demanded “to prohibit Moniava from performing certain actions with Kolya”, which, in her opinion, endanger the life and health of the child.
“The boy is a severely disabled physically and mentally, one of his diagnoses, as Moniava herself says, is an episode.
All doctors, including her subscribers, repeatedly told her that with such a diagnosis it was life-threatening, for example, attending concerts where there are strobe lights, loud music, flashing lights and harsh sounds.
All this can provoke an attack.
For Kolya, helicopter flights are also dangerous, because pressure drops can also provoke an attack, "Gurevich explained her position to RT.
According to the lawyer, the reason for the appeal was a Facebook post published by Moniava on January 12.
The head of the hospice wrote that Kolya was unconscious for a day and almost died.
At the same time, Lida did not call an ambulance for the boy.
“If I really called the ambulance when Kolya was feeling bad, he would now be lying alone in intensive care under a ventilator.
If a person has an incurable disease, in which resuscitation measures are no longer indicated (Kolya has such a decision of a medical council), it is better not to call an ambulance, ”Moniava explained her decision.
© Photo from personal archive
Stalin Gurevich believes that the ambulance for the boy Moniava was obliged to call.
“What Lida writes - that he will be connected to a ventilator and will be tortured - is not so,” the lawyer says.
- Despite his diagnoses, Kolya is not a palliative patient, he does not have a fatal illness.
In the state in which he is, you can exist for a long time.
This is not the case when parents, as mercy or some other reason, decide not to revive the child, he can live.
Therefore, making the decision to let him die in an attack, loss of consciousness is nothing more than deliberate murder.
In addition, Lida is not the mother of this child, but the guardian.
That is, she provides the state with services for raising a boy for money, and she does not even have the moral right to decide whether Kolya will live or not. "
At the same time, the lawyer emphasizes that she has no intentions to limit Moniava's custody rights or to deprive her of them.
“But if my complaint is satisfied, I think that Lida will hand over Kolya herself and put him in a hospice hospital.
Because she needs him not as a child, but as a symbol of her struggle, ”Gurevich believes.
The Moscow Department of Labor and Social Protection found no violations of the law in Moniava's actions.
“Specialists of social protection have visited the boy under guardianship.
The department is in constant contact with Lida Moniava, who has a boy Kolya under her care, specialists visited the family.
The child has everything necessary for life, taking into account the characteristics of his health.
The boy is under the supervision of doctors and nursing specialists, "the press service of the department told RT.
Lida Moniava and "House with a lighthouse" at the time of publication did not comment on Gurevich's complaint to RT.
Why should children with disabilities go to school
Everything that happens to Kolya is described by the head of the House with a Lighthouse on Facebook.
After more than ten years in hospital wards, Kolya's life became more active.
It costs Lide Moniave a lot of effort.
“Kolya and a hundred other children of the hospice do not go to school tomorrow.
Why?
Because schools play sick kids.
Schools are glad to see smart children, children of wealthy parents.
And they do not want difficult children, sick children.
They used to play rudely, they said that disabled children were unteachable.
Now they play politely: our school is not good enough for such a child, the neighboring one will be much better. "
According to Moniava, all children should study in a regular school, “regardless of whether they move on their own two feet or with the help of a stroller, it does not matter if they use foul language, Russian or mimicry and body language, eat sandwiches at recess or medical nutrition through a gastrostomy tube. ".
The goal is “not knowledge, but socialization,” writes Moniava.
As she believes, Kolya needs only to attend school “a couple of hours 3-4 times a week”.
“School education is guaranteed for all children, without any buts,” recalls Lida.
- And intellectually intact, and "not intact", and with seizures, and without seizures (Kolya has frequent seizures of epilepsy. -
RT
).
[…] Kolya has no language of communication yet, except for body language and facial expressions.
We do not know and will hardly ever know what he understands and what does not.
It is necessary to proceed from the fact that he still understands something, and therefore to communicate with him as with a full-fledged person. "
But not all readers accept Lida's explanations.
Under the posts, discussions unfold with several hundred comments - about whether people like Kolya need to study in a regular school and, in general, lead an active lifestyle, and not be at home or in a hospice under the supervision of specialists all the time.
Commentators' opinions are diametrically opposed.
“It is possible to drag a child in a vegetative state with EPI seizures every 20 minutes to a general education school, that is, to a children's collective with all its endlessly circulating respiratory infections, with only one purpose.
So that he picks up ARVI and quickly die.
There is no other benefit for this child, ”Svetlana Mashistova, a special correspondent for Rusfond, comments on social networks.
- A child with gross malformations is not a simulator for working out good feelings, tolerance and mutual assistance for healthy peers.
Yekaterina Men, President of the Center for Problems of Autism, does not approve of Lida's initiative: “As long as we promote inclusive education through pedaling humanitarian feelings, we will not go far ... While we will declare that you can“ just sit ”at school (and so in some miraculous way “Socialize”), we will reinforce - in a pearlescent “empathic” verbal packaging - the idea of some children’s learning disabilities ”.
According to Ekaterina, inclusive education is "a systematic work to change the quality of schools, perhaps primarily aimed at healthy students."
In her opinion, it is impossible to achieve the result "through the construction of a ramp or" overexposure "of the wheelchair user in the classroom."
"I would like Kolya and other special children to study in the classes where my children study, who have every right to do so," journalist Olga Allenova writes under Moniava's post.
“Correctional pedagogy, correctional schools.
Here's what to talk about.
And to create unbearable conditions for both the sick and the healthy, completely depriving both of them of an acceptable learning process for them, is to harm both of them, ”comments the sister of the severely disabled Ulyana Menshikova.
Why does Kolya need an earring
The discussion under the post of Lida Moniava that Kolya now has an earring in his ear was going on with particular intensity.
“I believe that Kolya has the right to the same life as his peers,” Lida wrote.
- Spend no more time in bed than other children at 12 years old.
Dress is fashionable.
To go to a cafe.
Walking in heat, rain, and cold.
Travel.
Make trendy haircuts.
Travel in public transport.
To risk.
And yes, even insert an earring into your ear.
What for?
Well, for example, so that when people look at Kolya they say not “poor, sick, doesn't walk”, but “wow, what a fashionable earring you have, what a tough guy you are”.
© Photo from personal archive
“To dress well or have a haircut, a haircut is one thing, but an earring is another.
He has a foreign object in his ear, which can provoke epileptic seizures or simply interfere, ”Svetlana Mashistova from Rusfond was indignant in the comments.
"He won't be able to say about it, he won't even be able to scratch his ear."
There is no harm from “involuntary interference”, Grigory Klimov, head physician of the House with a Lighthouse, is convinced.
“Many aspects of helping children with serious and incurable diseases are associated with medical manipulations that involve“ interference with the body, ”Klimov recalls in a conversation with RT.
- Those procedures that are carried out to improve the quality of life of a child interfere much more seriously with his body - for example, the installation of a nasogastric tube, gastrostomy or tracheostomy, if necessary.
An earring in the ear is beautiful and cool.
But the main thing is an intervention that does not affect health and does not cause harm.
How they made a bow for a girl.
“It seems to me that such irritation that [Kolya] was not in bed, suffering all the time, began to grow even before the earring,” recalls Moniava.
There is indeed a lot of negativity in the comments under the posts about Kolya's trip to St. Petersburg, going to a bar, visiting an unauthorized protest action.
“Her target audience is mothers with equally heavy children.
And it is not without reason that they have such an emotional reaction - this is an insult for their hard life and for the fact that they do not have such opportunities as Lida - to take the child in a high-quality city stroller to where you want, to have assistants and nannies with whom you can leave such a child, "Elena Alshanskaya, head of the Volunteers to Help Orphans Charity Fund, explained in a conversation with RT.
Moniava herself does not deny that she would not have been able to take Kolya and provide him with the current level of care without the hospice.
She took custody with the beginning of the pandemic - the inhabitants of boarding schools are the most vulnerable category.
“It's impossible to pull it all off on your own,” Moniava admits.
- In order to simply transport him from the orphanage home, I had to equip a special bed, a chaise longue for swimming, since Kolya cannot sit and hold his head, oxygen concentrate, an aspirator, an Ambu bag.
Kolya eats through a gastrostomy tube, so he also needs a bunch of tubes and syringes.
And all these things, besides, you can't just go and buy at the pharmacy.
You have to order them, wait for delivery, sometimes two months.
And in the hospice all this was ready, and in two days they brought it all to me.
The stroller was also provided by the House with a Lighthouse, from there the nanny comes to Kolya.
According to Moniava, the set of equipment and consumables that the House with a Mayak allocated cost 500 thousand rubles.
"He has no place on the barricades"
“Lida objectifies Kolya, that is, sees in him not a person, but an object, uses him as a banner, a showcase of her convictions,” says Svetlana Mashistova from Rusfond.
- You can't make yourself a banner of struggle from a living person, if he himself did not clearly express his opinion on this matter ... He has no place on the barricades ... Initially, she took him to protect against the coronavirus.
And if she created all the conditions for him at home, dressed beautifully, took pictures for Instagram, there would be no problems, '' Mashistova is convinced.
- Yes, the child has an individual adult and a home.
But the risk of getting sick has not gone anywhere and has become even higher, because the guardian takes him with him to public places under the motto "Why not?"
To what extent do the declarations of the child's benefits coincide with reality in this case? "
Elena Alshanskaya agrees that many things Moniava really does and writes defiantly.
But he does not condemn her.
“She does not hide that she is doing this on purpose in order to draw as much attention as possible to how people with disabilities live in our country,” says Alshanskaya.
- We practically do not see hundreds of thousands of such Kohls who sit in boarding schools or are locked at home with their parents ... When we see a child deprived of basic communication functions with which he can express his consent or disagreement, at first it seems that he does not want anything and he doesn't need anything.
But this is not so ... In fact, it is objectified in boarding schools for disabled children.
It is there that they are actually the objects for which adults make decisions - often not in the interests and not to the benefit of children: for example, the decision never to raise a lying child, not to take him out into the street.
And because our society is absolutely not inclusive, we have such violent emotions caused by the only way out into the public arena of Lida and Kolya ”.