SVT News West has previously told about Max Lindvall from Gothenburg who suffers from Duchenne muscular dystrophy (DMD). The disease causes Max muscles to slowly break down. There is no cure. He has previously received the medicine Translarna, which will slow down the course of the disease.

A long process

This spring, the Västra Götaland region announced that the subsidy for patients who can no longer go. will be stopped on June 1st.

- If I can't have the medicine, it feels like I just want to disappear, Max told us earlier this spring.

The decision has now been withdrawn, after a wording on the effect of "non-moving patients" has been removed by the company. The decision is not final, but while waiting for answers, Max is allowed to continue his treatment, and for mother Petra Palmgren Lindwall there are mixed emotions.

- It feels a bit bitter. It has been many months of worrying and not knowing. At the same time, it will be a pause now that the decision has been postponed, she says.

The trips around Max's treatment have been many and this is now the third time the family has to wait for a decision.

- It's nice for Max not to have to think about this right now, to still get summer leave. But he knows that it can just as well be withdrawn in six months, says Petra Palmgren Lindwall.

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