Two years ago, Jan-Erik Gyllin contracted cerebral amyloid angiopathy in the brain disease.

The disease causes Jan-Erik Gylling to suffer from small brain hemorrhages that affect his entire life and eventually it will lead to death. From being an active inn owner and hardcore football supporter, he now needs extensive help to cope with his everyday life.

- Assistance would mean a decent everyday life that every person should be entitled to, says Jan-Erik Gylling.

"Four hours of need"

Despite medical certificates about his great need for help, the municipality of Hultsfred decided in February that his basic needs were not large enough - they believe that just over four hours of help a week is enough.

With personal assistance, he himself could employ assistants who know him, like his partner Kim Barman. But instead he is offered a home service, then the municipality does not allow the hiring of a relative, a situation that SVT Nyheter Småland has written about previously.

When the rejection comes, Jannes 'illness has already gotten worse - in April Jannes' doctor sent a new certificate that it is "extremely important to be able to quickly achieve the necessary help for a dignified life". He can no longer turn himself or eat himself or go to the bathroom.

Nevertheless, at the beginning of June he still has not been entitled to assistance. But the municipality says they can do a new investigation of Janne's needs, only he submits a new application.

- If you come back to us and say that there has been a deterioration, then we inform that you need a new application, says social director Ann-Gret Sillén.

Why Jan-Erik Gylling and Kim Barman did not receive this information earlier, SVT does not receive an answer, as she does not want to comment in the individual case.

Months without a decision

His great need in combination with the risk of being infected by corona means that in the spring the family did not dare to use the home service or the relief housing that they have been offered - in Hultsfred, a caregiver meets on average 13 different employees in two weeks.

Instead, partner Kim Barman has taken care of Jan-Erik Gylling without compensation. Their economy has suffered.

In a conversation with the municipality's officers, which SVT has taken part in, Jan-Erik Gylling also appeals for assistance on behalf of his partner:

- She has no life. She is a slave, he says.

But in the spring, there was a light in the dark, the support of football supporters in IFK Gothenburg, who through a fundraiser collected enough money to keep them out for a little while.

In the clip above, Jan-Erik Gylling and Kim Barman talk about their difficult situation, and what personal assistance would mean for their lives.