Health priority
International Albinism Day
Audio 48:30
Albinism is a hereditary disease causing significant visual and skin disorders.
© Shutterstock _ Dietmar Time
By: Caroline Paré Follow
1 min
On the occasion of International Albinism Awareness Day, we are dedicating the program to this hereditary disease causing significant visual and skin disorders.
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A rare genetic disease, albinism is characterized by insufficient production of the pigment that colors the skin, eyes, body hair and hair.
What support for patients?
How to fight against the false beliefs that revolve around this disease?
Pr Benoit Arveiler
, geneticist.
Chairman of the Scientific Council of
Genespoir.
Head of
the Molecular Genetics Laboratory of Bordeaux University Hospital
and Researcher in the
MRGM Laboratory (Rare Diseases: Genetics and Metabolism), INSERM U1211
.
Prof. Mohamed Cissé
, Head of the STD Dermatology Department at Donka University Hospital in Conkary, Guinea.
Vice-President of
SODAF the dermatology society of French-speaking Africa
Béatrice Jouanne
, president since 2003 of
Genespoir
, French Albinism Association, an association created in 1995 in Rennes.
Pamela Capo Chichi
, President of the
NGO VALEUR ALBINOS
, based in Benin since 2009.
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International Albinism Awareness Day