"Medical care children" and their families, who are indispensable for ventilators and suction of tan, have launched the first national organization to appeal to the government for enhanced support.
While the number of children whose lives are saved due to advances in medical care has increased, the number of "medical care children" who are indispensable for daily ventilation such as respirators and tans due to residual disabilities has increased, and the latest by the national research group. It is estimated that there are more than 19,000 people.
Therefore, the first national organization "National Medical Care Line" will be established with the participation of medical care children, people who need medical care even after adulthood, family members and supporters from 43 prefectures nationwide. , The ceremony was held online on the 27th.
Participants greeted, "The points that were active in each area were finally connected," and "I want to raise a voice so that any child can live better."
There are many areas where we do not receive sufficient support for schooling and living, so we will propose improvements to the system to the national and local governments, and will also engage in activities such as events where families can interact and activities to make children with medical care widely known. about it.
Mr. Kazuho Miyazoe of Tokyo, who will be the representative of the "National Medical Care Line", has a 9-year-old son who needs a respirator. , I can finally reach the society with the voices of people who did not know who to tell or how to change the status quo. I want to do activities that can enrich the lives of the parties concerned. "