The life-saving medicine that was "soul bargained" came to Wuhan, a 3-year-old boy with a rare disease received the first injection in Hubei


　　"This is the best New Year gift from the country"

Zheng Yan saved the pill box, and she wanted to tell her son that "the country gave you a second life."

　　Photo by Miao Jian, reporter from Changjiang Daily

　　Changjiang Daily (Reporter Zhang Weina) The New Year that the citizen Zheng Yan is looking forward to is coming as scheduled.

On the first day of 2022, Zheng Yan's 3-year-old son Rui Rui finally got a "life-saving shot."

　　On December 3, 2021, the National Medical Insurance Administration held a press conference to announce that Noxinassen Sodium Injection was officially included in the National Medical Insurance and will be implemented on January 1, 2022.

Every day after that, Zheng Yan counted the days with her fingers, waiting for the arrival of the new year.

　　At about 10:40 on the 1st, Rui Rui, who was successfully given the "life-saving shot", was taken out of the operating room by her mother.

"The stone in my heart fell to the ground, thank the country for giving the child a second life." Zheng Yan said.

"Thanks" is what Zheng Yan used to say in the past month.

　　In October 2021, Rui Rui was diagnosed with Spinal Muscular Atrophy ("SMA").

The doctor told Zheng Yan that there is a medicine called Nosinasheng Sodium Injection that can treat Rui Rui’s disease, but the annual medical expenses are as high as 550,000 yuan. If the medicine is given up, the child will slowly degenerate to the point where the whole body can not move except the eyes. , And can only live up to 18 years old.

　　Zheng Yan discussed with her husband that she would save the child even if she sold iron.

In order to make up for the medical expenses for the first year, Zheng Yan planned to sell the house, but the doctor advised her to wait, "wait for the outcome of the medical insurance negotiations."

　　Zheng Yan often said that their family is unfortunate, but also fortunate.

Two months after Rui Rui was diagnosed, the National Medical Insurance Bureau held a press conference to announce the results of the 2021 National Medical Insurance Drug List adjustment. Among them, the Noxinasheng Sodium Injection for the treatment of Rui Rui was included in the medical insurance.

　　As a beneficiary, Zheng Yan is even more aware of the difficulty behind including medical insurance.

"At the negotiation site, the original offer price of 50,000 yuan per bottle of medicine, after 8 rounds of negotiations, the price of each bottle became 30,000 yuan." Zheng Yan watched the "soul bargaining" video on the negotiation site over and over again. .

　　At 10 am on the 1st, Rui Rui walked into the operating room and became the first injection patient in Hubei after the SMA treatment was included in the medical insurance.

Zheng Yan told reporters that the injection process was very fast, and the whole process only took 40 minutes.

　　The couple looked at Rui Rui who had finished the injection and wept with excitement.

　　"This is the best New Year's gift from the country." Zheng Yan said, holding her fingers and waiting for today, and finally waited.

The doctor told Zheng Yan that Rui Rui needed to inject 6 injections of Nosinagen Sodium Injection this year, and the first three injections would be completed before the Spring Festival.

　　Rui Rui hopes that when school starts after the Chinese New Year, he can play with the children in the kindergarten.