Daily on medication to suppress the pain, lingering fear that the cancer will spread, a donor kidney that cannot be placed.

Patients who do not get their turn due to the corona pressure in the hospitals feel scared, powerless, frustrated and angry, according to the many dozens of responses we received to a call.

A portrait of eight people waiting.

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Ronald Oostenbrugge (37), East Souburg, is waiting for a kidney transplant.

"My kidneys are almost broken, they are only functioning at 9 percent. In mid-December I was due to have a kidney transplant. My father donates a kidney. Every time the values ​​are checked, it is exciting again. If they deteriorate further, I have to go flushing or dialysis."

"Due to the rising corona figures, I was already told last month that mid-December will be January or February earlier. That was a disappointment. You live up to such an operation, it says at work."

Ronald van Oostenbrugge.

Ronald van Oostenbrugge.

Photo: Arie Kievit

"Now I sometimes have to recover for two or three days after a day out or doing odd jobs around the house. After a very busy day at work I am knocked out. I also get cold quickly. If I have a new kidney, I can function normally again. "

"I think it really sucks. Every time I hear that people with corona go to IC, I get angry. And then there are people who think that corona is nothing and do not want to be vaccinated ... I need care to survive. The people who really need care are pushed away. The cabinet must act much harder, introduce stricter measures to reduce the infections. All I can do is hope for a call from the hospital that there is one place for my surgery."

Peter van Liere.

Peter van Liere.

Photo: Arie Kievit

Piet van Liere (92), Middelburg, is waiting for an operation for a new hip.

“My father went to the gym five days a week until he had a fall and broke his hip late last year,” says his daughter Monique. "It was really his outing. He drove there himself in the car, saw some people, did his exercises. He loved that. I think he was the oldest member of the gym."

"After his fall, he continued to have pain complaints and developed severe osteoarthritis. That is why it was decided in September to have an operation. All examinations were prepared, with the intention to operate on him in November. But now he is still on the waiting list, and we do not have any idea when it's his turn Look if you're 60 you still have time you can say but when you're 92 it's different At that age you may not have that much time left He can barely walk and loses As a result, muscle mass really becomes less fit."

"He takes eight paracetamol a day to suppress the pain, my father is really gloomy because of it. Fortunately, my mother is still fit and he regularly has people around him. But the uncertainty gnaws at him, you just see that. He understands not why there are so many people who don't take the shot Look, the vaccine is there, you can protect yourself against the disease, why don't you do it, you don't live alone in the world, you see now that others are in trouble sit by your choice."

Robin Buis and his mother Bianca.

Robin Buis and his mother Bianca.

Photo: Rob Voss

Robin Buis (11), Apeldoorn, has to have his inflamed tonsils removed.

Robin: "How much pain I have on a scale of 1 to 10? 9. My throat hurts all day. That's not nice. Sometimes I have to stop playing football, because I have so much trouble."

Mother Bianca: "Robin's tonsils have been inflamed for a few months now. He suffers from it every year, but the doctors kept saying they didn't have to come out yet. Now it's different. They are really too big and red and have to come out. Last week he has been sick at home all week. He has a sore throat, raised it and is very tired. Those tonsils are really a source of irritation. The ENT doctor said we will have another child when they are out. we wait eight months to a year until they can get out, that's how long the waiting lists are. When the doctor said that, I thought he was joking, we were shocked."

Robin: "I hate that I have to wait so long. I now have to take a drink every day. It works, but my throat still hurts."

Bianca: "Until the operation, Robin has to take antibiotics every day, so that he can still do his things. He is given a lighter dose, but of course that is not possible. This is the only option. The annoying thing is that Robin is under the weight of the adults. We tried to get him in the children's ward, but that was not allowed. And the health insurer could not help us either. We don't blame the care at all, by the way. They don't want this either."

Robin: "I also understand that other people with cancer or heart problems, for example, need more care. But I still hope that we will be helped sooner."

Hennie van der Bent.

Hennie van der Bent.

Photo: Frank Jansen

Hennie van der Bent (61), Voorburg, has an umbilical hernia.

"Of course I know there are people who are worse off. But still, if you have to walk every day with pain...I have had an umbilical hernia since September. The hospital said I would have surgery in a few weeks to three months. turn into."

"That will take much longer. As long as my bowel does not bulge out, there is no danger. But as soon as that happens, I have to go to the emergency room immediately and it may be an emergency operation. You don't want that, because then you have an intestinal infarction and bits of gut can die."

"I take painkillers every day and still have a nagging pain all day long. I get attacks at least two to three times a week. Then I really writhe and take morphine. I don't want to use too much morphine, because that you're drowsy and I just work. Besides, I'm afraid I'll get addicted to it. All those drugs are not good for you either."

"I'm also waiting for an ear operation, because there is a hole in it. I don't mind that. I mainly hear badly, but just ask three times: what do you say? It doesn't hurt me."

"This situation makes me grumpy and a bit depressed. It is so hopeless. When they say: in two months we will help you, you have a dot on the horizon. Now you know nothing, it could take three-quarters of a year. Not feeling well at all, I want to get rid of that pain."

Mary Onderweegs.

Mary Onderweegs.

Photo: Emiel Muijderman

Marije Onderweegs (32), Oldenzaal, is waiting for a brain scan for her severe epilepsy.

"Since I was 17 I have had to deal with a complicated, severe form of epilepsy. Since then my life has come to a standstill, I have not been able to do what all my peers were doing: studying, living in rooms, pursuing a career. And it still is today. Because my body isn't doing what I'd like, I feel like I'm not growing with people around me."

"I have been in a research project for brain surgery since April 2019. The last scan in that research would take place on 6 and 7 December, I have been waiting for it for more than a year. They want to see where the epilepsy is in my brain, and whether it it can operate. The risks can be great, so that is very close. But last week the operation was canceled. I do not know when it will happen now. The outcome of the process is already uncertain, and due to this postponement, the hope is a good ending again much further away."

"I wish people who don't follow the rules, or who don't get vaccinated without medical reason, would realize how much trouble they cause others. This pandemic is temporary, but a brain disorder is limiting for your entire life. "No work, many things cannot be done that are very normal for others. People can just get vaccinated. Make that little effort for someone else. And also realize in corona time what you can do."

Robert Koelewijn.

Robert Koelewijn.

Photo: Marco Okhuizen

Robert Koelewijn (67), Heemskerk, has bladder cancer and is waiting for an operation.

"When you hear that you have cancer, your world becomes very small. So much goes through you: how much time do I have left, are there metastases, how aggressive is the tumor? I am a priority on the waiting list for an operation that needs to be done." show whether my bladder has to be removed or whether another treatment is possible. But the hospital in Beverwijk has closed a number of operating rooms, so it cannot continue for the time being. I have no idea when it will be possible."

"I'm a photographer, I've captured demonstrations all my life. What I saw at the corona protests really beats everything. Like protesters challenging the mobile unit, attacking the media. It's disgusting what you see happening."

"I ran into a man without a face mask in the supermarket this week. I had one left over, so I asked if he wanted it. No, was the answer. I explained that people like him ensure that my surgery cannot go ahead. "He was very sorry, he said, that I am sick. But I thought: you don't give a shit. You just shit on everything."

"And those kinds of people are helped in the hospital if they have corona, but I can't have surgery. What if I later turn out to have metastases? I feel like a second-class patient and stand with my back as someone who adheres to all measures against the wall. My body is full of anger and emotion."

Gijs Willemse.

Gijs Willemse.

Photo: Koen Verheijden

Gijs Willemse (17), Oss, is waiting for an operation for an incisional hernia in his abdominal wall.

"During my exam week I was very stressed because I was waiting for an operation. What if the tear in my abdominal wall became urgent?"

"In September I suddenly had terrible abdominal pain, just above my navel. I turned out to have a tear of about 8 millimeters in my abdominal wall. That was caused by a scar from the removal of my appendix."

"It is a bit of a shame that I suffer so much from such a small cut. I can no longer work out, because that puts too much tension on my stomach. At work I can no longer lift and I only just manage to get behind the Sometimes I have to leave school early because I get huge shooting pains."

"The doctor said that my surgery might take five to ten minutes and that I need a day hospital. But as long as it's not an emergency, I have to take paracetemol."

"It is not a pleasant thought that this is happening exactly in my final year. I am in 5 havo and I want to get my diploma. This is already difficult because of corona, because we have had a lot of class cancellations."

"I think it is sad that it has to go like this. I also think that is especially sad for people with cancer or heart failure. Above all, I find it very difficult that people do not get vaccinated and keep hospital beds occupied. I myself have taken an injection for my family and to make sure I don't need a bed. I hope I and many others get help as soon as possible."

Jacqueline de Keijser.

Jacqueline de Keijser.

Photo: Arie Kievit

Jacqueline de Keijser (60), Barendrecht, is waiting for an operation for a new knee.

"I have had pain in my knee for about three years, due to a tear in my meniscus. It was removed at some point, but as a result my cartilage has broken down at a rapid pace. I hardly have any cartilage left, it is almost bone blunt when I walk. It is a lot of pain, although I try to counteract it with heavy painkillers such as oxycodone. But that is bad for your liver. And my condition is deteriorating, I'm disappointed."

"Last Wednesday I was supposed to get a new knee, but the operation was canceled the day before. Very sour, it makes me angry and sad. I am in so much pain! And what are the hospitals full of? With people who consciously do not who say that corona is just the flu and don't take it seriously, even if they end up in hospital. I think it's very unfair."

"I am able to go to The Hague with a banner that reads: I ARE DISCRIMINATED, I ALSO INCLUDE CARE. It is also the government's fault; there has been so much cutback on healthcare. And they would "We can also oblige themselves to be vaccinated. Then the hospitals would not have been full now. I don't blame the hospital itself at all, I want to emphasize that. They do what they can there."

"I was also always a caregiver for my father. I can't do that until I have had surgery. And I have no idea when that will be. Now home care has to come to my father more often, and they are already so busy. not on?"

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