A rare disease that deprives this girl of crying and bathing

A girl from Hastings, Jefferson County, USA, suffers from a rare disease that prevents her from crying and bathing.

Niah Selway is allergic to water, a rare condition called "Aquagenic Pruritus", which means "aquatic itch", a rare genetic disease, which makes her suffer and suffer when tears run down her cheeks, and she cannot shower.

And the water touching the body of the 23-year-old girl makes her suffer severely and feel “paralyzed” for long hours, and not only that, but also feel very tired and exhausted all the time, according to Al-Watan newspaper.

And Niah’s rare disease, which she was born with, and forced her to give up her job, she first described to the newspaper “ladbible”. Over five to 10 minutes, she leaves her body as if it burns, and it lasts for 3 hours, for example.”

And since an individual’s crying and shedding tears is a legitimate right for him to live, but for “Niyah” it is the suffering itself, she tries hard not to deprive herself of crying: “When tears touch my cheek it becomes red and rough, and when water touches my body I feel that my body is starting to burn. As if my blood is boiling.”

The girl continues by talking about her suffering, especially with regard to her personal life and bathing, where bathing was one of the challenges she faced: “Everything I have to do in my daily life causes me pain, it is very stressful, I use most of my time in recovery.”

And according to her talk during one of the television interviews, she may improve over time: “Doctors told me that,” and during the last period, a German clinic spoke to her that there is a treatment that makes her recover, but she needs a large amount of up to 250 thousand pounds, so she fired “Nia.” » A donation campaign through one of the electronic donation sites to get the price of the treatment.

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