Dong Zhenzhen sits in front of the computer every day and stays busy until late at night
When he was 9 years old, he was diagnosed with "gradual freezing syndrome", and then his body muscles gradually atrophy, so that now only three fingers can move.
However, only with these three fingers, Xuzhou boy Dong Zhenzhen fought against fate again and again.
At the age of 22, Dong Zhenzhen opened an online shop. Over the past 11 years, with unimaginable perseverance, the guy has gradually expanded the online shop. Now, he can not only afford his own life, but also found a wonderful life of his own. the road.
Yangtze Evening News/Ziniu News reporter Ma Zhiya
Correspondent Xiao Huiwen/Photo
Suffered from a "strange disease" at the age of 9, the doctor said "it is difficult for a child to live to adulthood"
Dong Zhenzhen is 33 years old and lives in Fortune Bay Community, Tongshan District, Xuzhou.
Every afternoon, he was in his room, sitting in a wheelchair, facing the computer, and was busy until late at night.
The ventilator in the room and the fingers that the guy can only move on his right hand indicate that he is different from normal people.
Dong Zhenzhen is a patient with "progressive muscular dystrophy", also known as "gradual freezing syndrome".
Before he was 9 years old, his family did not know about this slurred disease. Dong Zhenzhen’s mother told reporters that the child was weaker than an ordinary child after birth. The family members sought medical advice and failed to find out the problem. At one time, he thought the child had a "weird disease." ".
When Dong Zhenzhen was 9 years old, his body became weaker and weaker, and fractures could occur with a few casual activities.
In the end, the cause was found in the Fourth Hospital of Xuzhou. He was diagnosed with progressive muscular dystrophy, a rare primary skeletal muscle disease. Its clinical manifestations are mainly slowly progressive muscle atrophy, muscle weakness and varying degrees. Dyskinesia, like being gradually frozen, is commonly known as "gradual freezing syndrome".
The incidence in the population is about one in 100,000.
The news that the child was diagnosed made the whole family feel collapsed. In order to treat the child, the family moved to Beijing, Shanghai and other cities. The family's savings had long been spent, but despite the high debts in the family, Dong Zhenzhen's health did not improve.
There was a doctor who quietly told Dong Zhenzhen's mother, "It may be difficult for a child to live to adulthood."
"In the darkest moment of my life, it was my parents who gave me hope," Dong Zhenzhen told reporters that his parents always encouraged him, "You are no different from others. If you are in poor health and have your family to take care of, you can also find yourself with wisdom. The way."
Become a technology expert and open an online shop to find a new way of life
Due to physical reasons, Dong Zhenzhen had to drop out of school in the fifth grade.
In order to take care of him wholeheartedly, his mother quit her job.
Dong Zhenzhen usually spends most of his time in bed, and he depends on his mother to feed his meals. He can only pass the time by reading.
In 2005, my mother bought a computer with the intention of eliminating loneliness for the child. Unexpectedly, this brought Dong Zhenzhen into a new world.
Dong Zhenzhen has a quick comprehension ability. Without communicating with anyone, he learned to surf the Internet. Most importantly, he found a new hobby-K song on the Internet.
Since the family felt that the child liked it, they added professional audio equipment to him on the advice of others.
Faced with complex audio equipment, Dong Zhenzhen has turned from a "xiaobai" to a technical expert.
He quickly mastered the audio equipment debugging. After the equipment malfunctioned, he could repair it without a teacher.
Dong Zhenzhen's technical experience in audio-related equipment has made him a technical "great" on the Internet, which also paved the way for him to start a business.
In 2009, Dong Zhenzhen taught a netizen online to solve the audio equipment failure. The other party accidentally said, "You have such technology, why don't you open an online store?" This sentence suddenly awakened Dong Zhenzhen, and he has been suffering Since his illness, he has completely relied on his family to take care of him, and he has no financial resources.
He told his parents what he thought. Although his family was skeptical, they still spent 500 yuan to apply for a Taobao online store account for him.
Under the name "Xiaobing Audio High-end Equipment", Dong Zhenzhen began to operate audio equipment such as sound cards, microphones, cameras, and headphones.
"Knock" to open a new life and strive to give back to family and society in the future
At the beginning of his business, Dong Zhenzhen's online store had many difficulties.
He relies on his technical ability to do a good job of after-sales service in the process of selling products. As long as he becomes his customer, it is equivalent to an additional technical supporter.
He is responsible for receiving orders, and his parents help deliver goods.
Relying on the reputation of netizens, Dong Zhenzhen’s online shop slowly walked out of the trough.
The improvement of online store business also gave Dong Zhenzhen self-confidence.
When his younger brother was in college, his family couldn’t afford the tuition due to debts. Dong Zhenzhen took out the income from the online shop to help his brother fulfill his dream of college. When the family borrowed money to buy a house, the down payment could not be collected. Dong Zhenzhen turned out like a magic trick. He made more than 70,000 yuan in deposits to fill the gap; his father encountered a capital turnover problem in business, and Dong Zhenzhen stepped up to solve his father’s urgent need.
After running the online shop, Dong Zhenzhen sat in front of the computer at 2 o'clock in the afternoon every day, and was busy until late at night.
He felt that through the Internet, he gained wealth and self-confidence.
For many years, Dong Zhenzhen's body has been competing with him.
In 2016, his condition worsened. After treatment, only the three fingers of his right hand could move.
More importantly, his cardiopulmonary failure was so fast that his family had to install a ventilator in the room.
Because the body cannot move, the mother guards her son almost all day, turning him over and scrubbing him every one or two hours.
Dong Zhenzhen now finds it difficult to speak even for a long time. His mother simply put a hand bell on the bedside. As soon as the bell rang, she started various daily operations.
It is under such physical conditions that Dong Zhenzhen has always maintained an optimistic attitude. He told reporters that he has always kept in mind the words of his parents, "I am no different from others. As long as I work hard, I can find a life that belongs to my own. Road.” For the future of life, Dong Zhenzhen hopes to continue to manage the online store with his heart, and use his three fingers to repay his family’s contributions and all those who care and help him.