A donor who shares 15,000 shares ... and the patient's father is unable to secure the remaining amount

"Sir" needs 153,000 dirhams to pay for his treatment of "Hurler's syndrome"

A donor contributed 15,000 dirhams out of a total of 168,000 dirhams for the treatment of the "Sidy-Mauritanian - 12-year-old" child, who suffers from a rare genetic disease called "Hurler syndrome", and his father appeals to someone to help him secure the remaining amount, which is 153,000 dirhams.

The patient's father expressed his deep thanks to the donor and his support for his suffering in light of the circumstances he is going through.

The "hotline" coordinated between the donor and the Department of Islamic Affairs and Charitable Activities in Dubai to transfer the donation amount to the patient's account at Tawam Hospital in Al Ain.

According to the hospital report, “the patient currently cannot walk, and he can be treated by replacing the lost enzyme periodically. The cost of treatment per week is 7,000 dirhams, equivalent to 168,000 dirhams every six months, and his father appeals to someone who helps him to complete the costs of treating his sick son, given that The circumstances he is going through ».

On the 23rd of this month, Emirates Al-Youm published the story of the child “Sir” suffering with illness and his family’s inability to pay for his treatment, given the circumstances it is going through.

The patient’s father had narrated the story of his son’s suffering with the disease, saying: “(Sir) has been suffering from this disease since he was five years old, and his case was diagnosed in a hospital in Mauritania, and then I brought him to the country because there was treatment at Tawam Hospital in Al Ain, where it was found after the tests were conducted. And the medical tests in the hospital that he suffers from a rare genetic disease called (Hurler's syndrome), which is a mucosaccharide polysaccharide disease, which results in a deficiency of an enzyme to get rid of unwanted substances inside the cells, and if it is not treated it will cause damage to most of his body parts, noting that my older son suffers from the disease Exactly the same ».

He added, "My son suffers from his inability to walk normally, as he walks on his toes, has protrusion in some vertebrae in the spine, and needs surgery."

He continued: “Doctors confirmed that my son needs life-long treatment by replacing the missing enzyme periodically. The cost of treatment per week is 25,907 dirhams, and the health insurance card covers 70% of the cost, and the rest of the percentage (30%) must be paid, and it is 7000 dirhams. Weekly, and this is an amount that exceeds my modest financial capabilities. ”

He pointed out that «the disease caused my son problems in the eyes and joints due to the accumulation of the enzyme, noting that he had not undergone treatment for a long time, and now his condition has worsened, noting that doctors have assured us that if he does not undergo treatment, he will be exposed to an enlarged liver, spleen and other organs. He suffered a warp in the joints before some time as a result of not taking the treatment.

He said: “My children all suffer from the same disease, and they were exempted from the costs of treatment last year, but the health insurance card was refused to renew it when it expired, even though they need treatment, and I am the only provider for my family, and I work in a government agency with a salary of 5500 dirhams, in addition to me. I suffer from Parkinson's disease, and I am struggling to pay for my treatment. ”

Delayed treatment of the child exposes him to an enlarged liver and spleen.