I spoke in an article yesterday about the suffering of families that embrace sensitive children, and I received a response from a reader who summed up the problem and the solution, and better than the studies of experts, theorizing of theorists and the labyrinth of legal, financial and administrative affairs. The story is short of a person who has lived the experience and seems to know its details, so I found it very useful to present it as it is:
"I am attracted by the subject that I read about the children of concern, and the beginning must praise the steps taken by the state, thankfully, there are several channels and destinations of the owners of the great interest, but this does not preclude the existence of some important observations should pay attention to:
The first is that the owners of the concern have the right to a monthly salary by social affairs, regardless of the level of household income, because there are expenses for them more than any individual in the family, while the current situation is to consider the family income - the value of the salary of the father or mother - without consideration To the presence of other members of the family, and the burden of living, and other responsibilities, and this happened with me personally, which made me take responsibility for the rehabilitation of my son from the ground up, and still, and now, thank God is studying in a government school in the fifth grade.
Second, there is no health insurance intended for the owners of the interest to equal health insurance with the healthy, and this is the biggest mistake, because the owners sometimes need certain equipment, or steps to receive treatment longer than the treatment period of healthy people.
There are no designated tickets for them, there are no designated parks, and most importantly, there is no law or clause in the Personnel Rules for staff members who are within their family of concern to take care of them with regard to vacations, salary allowances or exceptions In retirement.
We also have the right to ask whether universities are equipped to receive those with autism, especially those with autism. Are not they entitled to complete their education in public colleges and universities?
Above all, it is necessary to provide centers for treatment and rehabilitation for those who are inspired, so that they are integrated in every city, and are state-owned and not commercial. There is a lot of exploitation in this aspect, and it must be controlled by a body specially created to follow up the files of each individual Scientific, health, rehabilitation, social, sports and others, and follow-up the situation of their parents psychologically as well.
I have been informed by some special education specialists in schools that there are people who do not recognize that their child is an important person, especially those suffering from autism disorder, so that the teacher of special education finds it difficult to communicate the child's educational needs in the absence of parents to understand the situation of their son or daughter, "Educating parents is a national duty of the Ministry of Education, the Ministry of Health and the Ministry of Social Affairs, or a separate body should be used to carry out this role so that families do not care where to go, who is best to follow their son, or provide specific services."
"Ask an experimenter and do not ask a manager or an expert." This is what I deduced from the message of the author's sister, so it had to be presented to the competent authorities and approached more than the concerns of the parents of the children of concern.
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